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Discussion Starter · #1 ·
Hello, I know you probably hear this alot, or get alot of newbies asking this question... Is this a Lupus Rash?

Diagnosied with Fibro 8 years ago..... Thought to have Lupus.

Over the course of the past 8 years I have been shoved from Dr. to Dr. and several times have thought I had Lupus. At one point they even tested me for MS...

My symptoms as of now include:

Headaches ( almost daily)
Extreme Fatigue ( feel as if I cannot hold the phone to my ear or blow dry my hair)
Vertigo
Muscle weakness (legs and arms feel like spaghetti)
Insomnia
heart palpitations
My insides hurt around my rib cage boths sides
If I take a deep breath I feel pain
Sun Sensitivity ( instant headache, swelling in areas touched by sun)
Wake up with swollen hands fingers and face, like my eyes swelled
I feel disoriented at times, like I cannot think straight, and I tend to have blurred visions at these times.
low iron levels off and on, anemia more than not.
Stiff every morning, cant bend my neck down at all.
Extreme Reflux
Hair loss
Fluid retention in both ankles and calves of legs
Ulcers come and go in mouth


My ANA has been positive several times over the past years, but when I go back like in a 6 month check up, levels are back close to normal.

I had never had a "rash" like this ever, until last few weeks..... I went to my son's baseball game, and this was during a time, when I felt so weak, horrible I had pain, I felt as if I couldnt "go". My husband noticed this. on both arms, backside. It was a rasied red blotchy rash. After a few days of staying in the house, it started to get pinkish in color. Went with a friend to swim, it came back. I decided to stay in , not only because of the rash but because I felt so yucky, it started to slowly go away and left a "scaley" feel to it, and it has remained.

Im so confused, my Rheumy is out of town 3 hours away, so went to see GP he says "hives" and sends me to allergist, allergist says "no way" hives go away after 24 hours, and he highly suspects auntoimmune disease. Of course we all know how difficult it can be to diagnosis this, and my allergist when through all of that speech. I want to come to you all, because some of you that do have it may be able to tell me, your opnions and if I should be worried or what??

Im so so very tired... and appreciate any responses you may have, I have been lurking the boards trying to read posts to gain any insight I can to this disease...

Amanda
 

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Discussion Starter · #2 ·
Here's the RASH pic finally............ let me know what you think? Thank you so so so much.... I appreciate this so much!


 

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Hello Mandiee

The only possible answer is that this rash might be lupus related. It can sometimes be hard for even specialist dermatologists to tell just by looking in real life as lupus rashes can resemble those of other conditions.
There are a number of 'skin' sites linked to in a post stuck at the top of the Symptoms section of the forum you might see something similar there.

Look at the 'subacute cutaneous' ones - this sort is very often on the upper arms. Mind, I'm not saying that's what it is ! :) By the way many people find some of the 'skinnny' pictures upsetting.

The 15 posts before links or images is to protect us from ill intentioned people misusing the forum. For genuine members reading this, please PM a moderator giving the link if you wish to post one sooner. :)

Cheers
Clare
 

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Just to add that it is the annular sort of SCLE that you are looking for, and that many of these cases are extreme and well developed. Lesions can change over time and look very different from how they started.

http://www.dermis.net/dermisroot/en/38885/diagnose.htm

Clare
 

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Hi Mandiee, sorry that you are feeling so crappy right
now, but we all feel and have felt that way. Lupus is called the disease of 1,000 faces for a very good reason.
It is diagnosed by your history, your present physical state, your symptoms, how and where you hurt,and the Rheumy
noting what he sees when you are in with him. As for blood tests, there is no one blood test that can say "yes" or "no"
you have lupus. The bloods are mainly a guideline for the
dr. You need to get with a good Rheumy and stay with
him, and force yourself to be patient, as a diagnosis takes
a long time. Meanwhile rest, stay out of the sun and do
not get stressed. :wink2:
 

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Hi Amanda

Although your symptoms may sound familiar it dosnt necessarily mean you have lupus.
Your skin rash to some degree I may say ,yes kind of but then again it looks like other rashes I have seen on people who do not have lupus.

The only way of knowing is getting a biopsy from a Dermie and a good Rhumatologist to look not only at your bloodwork but very importantly your symptoms.

The tiredness and frustration can make the task of finding some kind of diagnosis may seem overrwheming at times. I have had that experience as so many on here have also.

Keep going and good luck with finding out.:)
Nicky
 

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I saw your rash and it may be related to sun exposure.
I have put two photos in my photo upload (just click on my name on my avatar - then view public profile). I don't know how to get it in the post like you did. My rash is on my left back shoulder. It looks different then yours. Go check it out and all others may do the same.

Florie
 

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I have SCLE and mine are like that but angrier. I have the rash/lesions all over my back, upper arms, upper chest and hips. It sucks, its itchy and painful. Hang in there chica. :)
 

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Hi Alhiser,

First of all welcome to the site.

You replied on a very old thread. It started 6/27/08 and the member hasn't been back since 6/27/08.

To end anymore replies on this thread I am closing it.

You might like to post something on the symptom part of this site.

Thank you for your understanding.
Lyn
 
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