Hi everyone,
It has been a while since I posted on here but I am in real need of advice.
Yesterday I saw a new rheumatologist for the first time ever and thought the appointment was going well. Lots of questions asked and a lot of tests carried out.
At the end of the appointment he told me he had good news and bad news. The good news was that he could confirm my diagnosis of SLE (wonderful) but the bad news was that he could now also diagnose Sjogrens syndrome and Fibromyalgia.
I was handed information booklets and asked to return in 7 weeks so he could examine my blood results and lip biopsy. To be perfectly honest, I have hit rock bottom emotionally. I am scared of the new conditions but in particular the Fibromyalgia. What can I expect? How can I deal with it?
PLEASE can I ask that if anyone one here has this condition as well as SLE could they please offer me some advice as I really don't know where to turn.
Thank you all
Janine
It has been a while since I posted on here but I am in real need of advice.
Yesterday I saw a new rheumatologist for the first time ever and thought the appointment was going well. Lots of questions asked and a lot of tests carried out.
At the end of the appointment he told me he had good news and bad news. The good news was that he could confirm my diagnosis of SLE (wonderful) but the bad news was that he could now also diagnose Sjogrens syndrome and Fibromyalgia.
I was handed information booklets and asked to return in 7 weeks so he could examine my blood results and lip biopsy. To be perfectly honest, I have hit rock bottom emotionally. I am scared of the new conditions but in particular the Fibromyalgia. What can I expect? How can I deal with it?
PLEASE can I ask that if anyone one here has this condition as well as SLE could they please offer me some advice as I really don't know where to turn.
Thank you all
Janine