[calimar]

I know there are a million threads with a similar start, but I'm getting worried. A year ago, I had several months of fatigue. Then I had some very specific "symptoms". Mouth and nose sores, yeast infections, swollen eyes, light hair loss. I went to a doctor who ran some blood tests for thyroid problems, all came back fine. I healed, and life went on. Recently, I've had some fatigue, but not at all like I experienced last year. Then I started getting the mouth and nose sores, a yeast infection. My eyes have been a bit puffy, but this morning, I woke up looking like a blood hound. They were nearly swollen shut, my bottom lids hanging over my cheeks. My nose was even swollen as well. To make a long story short, I started Googling again and I'm afraid that's it's Lupus. Fortunately, Ihave no joint pain or other skin issues. I plan on seeing another Dr. as well. I just wondered what you guys thought.

 

[Lily]

Hi Calimar,

I am sorry you are having these health issues. Unfortunately there are a lot of things that mimic some of the symptoms of Lupus and Lupus seems to mimic a lot of other diseases. It isn't until the patient has some blood indicators and at least 3 of the criteria that they are diagnosed.

Most Lupus patients do get joint pain, it's something that's very prevalent amongst us. Not everyone gets the rashes, most get sun sensitivity, but again not everyone.

Good luck in your investigations and if there's anything we can help with as regards to understanding blood and urinalysis results, don't hesitate. You may very well have something else going on with your immune system, the list is endless. But a good doctor will run extensive testing to try and sort it out so do persist.

love
Lily

 

[onetay]

Calimar,
I would say that you have some problems that need addressed and that you are starting in the right directions. I would not start thinking things yet, but you have something worth watching. I would advise that you keep a notebook: make notes the time of year, what is going on right then (like loss of a job or death in the family), note what is happening with your body the order and the time between involvement. This will help when you go to your doctor and might short cut the time it will take to find out what is going on with you.

Don't forget to note the fatigue and what is going on around that time. For many of us just waking up can cause fatigue. I am not sure if you have lupus it could be something else but you need to know for your peace of mind what is causing all of this that is going on with you.

I hope that this helped a little as I am not a doctor so can not say if it is lupus, it would be to your advantage to keep these notes for you and your doctors. Remember if it is lupus stress and other things like stress can be flare starters. There is a difference between fatigue and really tired, so make sure that you are not just wearing yourself down. Be positive and hope for the best. I wish the best for you in your journey to find out what is going on with you and if you would like to talk just drop me a line. Whatever is going on with you, you need a support in place.
Tammy

 

[lin]

hi, im sorry your having these piosdes too, but as lily say's its not always cut and dry, i wish you luck with all your trest, and hope which ever it is they can help you, lupus does mimic so much, and not always easy to Dx, we dont all follow the sings bloods sometimes like me they wait for more to go wrong, as maybe thats there only indecator, i only ever had ana come back poss.

All the best and keep us informed where your at.. Lin xxxxxxxx