hi yes i am newly diagnosed only yesterday, but after having read so much of the information that is out there it explains alot of how i have been feeling over the last 15 - 20 year. i also think that my daughters may have this in some form to and have advised both to get tested for it asap as it may explain alot to them to. they said that the hypermobility and arthritis didn't run in the family either but we have proved them wrong with 4 generations of us.
I've been coming to the forum now for several months as I'm not diagnosed but going through many tests and investigations. Everybody is so welcoming and very helpful. Their knowledge and support is simply FAB.