hi to all
its annie here, i posted a week or so ago, i have just been diagnosed with sle and i thought i would give you an update and ask some advice please.
My gp has put me on plaquinal on the advice of the rumatologist. I have asked for a referral to St thomas's and i am waiting for this to come through. My rhumie is not very forthcoming and said that i have mild lupus with no organ involvement as yet? What does this mean? Lupus is Lupus surely? He has been very casual about the whole thing and doesnt really seem to think my health is a problem. Maybe this is how it appears to me as i am understandably trying to come to terms with things. Sorry to moan but i am trying to educate myself about this thing and he isnt very helpful. I have another appt in a few weeks in the meantime. Just wondered, what exactly does plaquinal do? Can it stop lupus attacking other organs, its all very confusing....also, i am aware i should be avoiding the sun, with summer coming up, is there any particular sunscreen anyone can recommend? I am olive skinned and never really used it in the past. Many thanks in advance, you have all been great and i think i would have gone mad without the help and support on here!!!!
annie xxx
its annie here, i posted a week or so ago, i have just been diagnosed with sle and i thought i would give you an update and ask some advice please.
My gp has put me on plaquinal on the advice of the rumatologist. I have asked for a referral to St thomas's and i am waiting for this to come through. My rhumie is not very forthcoming and said that i have mild lupus with no organ involvement as yet? What does this mean? Lupus is Lupus surely? He has been very casual about the whole thing and doesnt really seem to think my health is a problem. Maybe this is how it appears to me as i am understandably trying to come to terms with things. Sorry to moan but i am trying to educate myself about this thing and he isnt very helpful. I have another appt in a few weeks in the meantime. Just wondered, what exactly does plaquinal do? Can it stop lupus attacking other organs, its all very confusing....also, i am aware i should be avoiding the sun, with summer coming up, is there any particular sunscreen anyone can recommend? I am olive skinned and never really used it in the past. Many thanks in advance, you have all been great and i think i would have gone mad without the help and support on here!!!!
annie xxx