TheLupusSite.com banner

1 - 2 of 2 Posts

·
Registered
Joined
·
14,661 Posts
Discussion Starter #1
http://www.lupus.org/webmodules/webarticlesnet/templates/new_empty.aspx?articleid=1918&zoneid=99

For what it is worth.
Most of the Qs & As are equally applicable to women and lupus ! It's a pity in my opinion there wasn't more focus on the issues relevant only to men. Or angled to men. I suppose they can answer only the questions they are asked.

The chats are often unsatisfactory I find. Often the questions can easily be answered from other sources and the specialist replies are very general and necessarily so brief they only touch upon the issues raised.

Clare
 

·
Registered
Joined
·
25 Posts
I don’t normally get into these chat room things….I type too slow, for one, and don’t really care to use Internet Shorthand, for another…But this transcript reminds me of a couple of Lupus “Support” meetings I went to more than 20 years ago….Speaker was a Doctor, you were allowed only one question, and there was no open discussion allowed…The whole thing was just a waste of time….

Message Boards are better for my needs, by far…I have time to compose my post or reply, without pressure or stress of having to rush it…And, with the vast amount of research that can now be called up on the web, I have been able to learn far more in one year as I did in the previous 30.…
 
1 - 2 of 2 Posts
Top