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Discussion Starter · #1 ·
:(:sad:Hi all,
All tests are normal, (sigh)
Could be 6 months or more before i even hear when my nerve tests are, & if they come back normal or nothing found the Rhuemie has said she does not want to see me again.
1 step forward, 25 back.
So sad, is it all in my head.:(
 

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Discussion Starter · #3 ·
At the moment, that's the last thing i want to think about, i'm so !!!!!!!!!!!!
Thanks, i just need....................That i don't know either.
Hugs everyone...
 

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It is in your head! We're all blithering lunatics! :rotfl:

After 6 years of having it pounded into me that it was all in my head, I'm having trouble dealing with it suddenly being real!!! What a ridiculous illness.

I think, you ought to find a new rheumy. Or give your present one a blind fold if they don't want to see you anymore.
 

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(((((((((((Doris))))))))))) I understand how defeated and deflated you must feel right now :hug:

Give yourself time to get your head around this and then make sure you get copies of every test this woman did :mad: I speak from personal experience and also what I have seen on this board - don't take their word for it, get the copies.

Then it will be time to pick yourself up and dust yourself off (and yes you will do that eventually, most of us have had to) and go in search of someone who knows what they are talking about. I can't believe she said she cannot diagnose on the previous 1:640 ANA result and the other positive antibody test you had. I mean it's not like you have no symptoms :mad: :hugbetter:

Grrrrrrrrr I am so mad on your behalf and also saddened how many times I read about less than adequate evaluation of a patient in respect of a possible Lupus diagnosis.

(((((((Doris)))))))) hang in there.

love
Lily
 

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Discussion Starter · #6 ·
Thanks Guys,
So hard to think at the moment,
I'm phoning tomorrow to ask for copies, i was going to anyway, i like to have my own set just in case.
Big Hugs to you all, i need them all at the moment.
 

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Hi Doris,

I'm 100% with Lily on this one. You have to make sure you get copies of everything!! And, as she said, your symptoms and that ANA are plenty enough to be taken seriously...

huge hugs :grouphug2:

Katharine
 

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Absoflippin lootly get copies of everything. Awww Doris, I went through the same , almost 10yrs of the doc looking at me sideways whilst sending me to every specialist bar none, except of course a rheumy :worried:

I am now A typical Lupus symptom wize and it took ten yrs but my RA was 116 when I eventually got to the London Lupus Unit.....Something is there, it's just taking it's time to show on the bloods.....Or the Rheumy doesn't know what to look for.

Chin up girl, you have been dealt a major blow and it will take time to recover. Be kind to yourself and make sure you feel stronger and more grounded then start again :hug:
 
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