I've had methyl-pred a few times now - it's fine, you just have to be aware that it causes all of the usual steroid side effects. One of those things that you love and hate at the same time :lol: Hope it works again for you.
1 - 9 of 9 Posts
Hey Christine,
I'm sorry to hear you're so unwell at the moment....
I've had about 45 pulses of 1000 ml of pred alone, about 7 3-day infusions of 1000 ml of pred followed by cytoxan, not to mention the 15,000 ml during attempts to receive rituxan (and that's not even counting the "small" shots of 125 ml of pred I got before plasmapherisis and of course all the oral pred etc etc etc). IV pred is definitely not a one-off thing in the sense that yes you can have more of it if you really need to but, unfortunately, just like the old regular pred in tablet form don't forget that IV pred does have some not-so-nice side-effects it may bring with it...
Hope you feel better very soon
:flowery:
Zoi
I'm sorry to hear you're so unwell at the moment....
I've had about 45 pulses of 1000 ml of pred alone, about 7 3-day infusions of 1000 ml of pred followed by cytoxan, not to mention the 15,000 ml during attempts to receive rituxan (and that's not even counting the "small" shots of 125 ml of pred I got before plasmapherisis and of course all the oral pred etc etc etc). IV pred is definitely not a one-off thing in the sense that yes you can have more of it if you really need to but, unfortunately, just like the old regular pred in tablet form don't forget that IV pred does have some not-so-nice side-effects it may bring with it...
Hope you feel better very soon
:flowery:
Zoi
hi
hi christine,i have had sle for 11 years now and my consultant cannot get me stabilised.i have had a lot of powerful drugs in that time but to no avail including cyclophosamide,rituximab just to name a couple.the only treatment that seems to help me is the methal pred ,i have 3 infusions over a period of a week and i have it every 3 months for the rest of my life as that is the only drug that seems to help me ,it does not mix well with my diabetes but i can get that under control.without the methal pred i would not be able to walk or anything and i know when the time as come for me to have the infusions.i call this my wonder drug as it gives me such a boost if only it could last a bit longer but never mind.i wish u well and take care talk soon tracey x
hi christine,i have had sle for 11 years now and my consultant cannot get me stabilised.i have had a lot of powerful drugs in that time but to no avail including cyclophosamide,rituximab just to name a couple.the only treatment that seems to help me is the methal pred ,i have 3 infusions over a period of a week and i have it every 3 month
s for the rest of my life as that is the only drug that seems to help me ,it does not mix well with my diabetes but i can get that under control.without the methal pred i would not be able to walk or anything and i know when the time as come for me to have the infusions.i call this my wonder drug as it gives me such a boost if only it could last a bit longer but never mind.i wish u well and take care talk soon tracey x1 - 9 of 9 Posts
