Hi iguy
I am content to describe my Lupus as "mild" and I am currently experiencing only my second significant flare since I was first diagnosed 10 years ago.
The first flare in my early 20's primarily affected my platelets, took about 2 years to settle down and I then had 8 years mostly symptom-free (and drug-free). I stopped thinking about Lupus all together, occasional aches, fatigue and migraines were something I was accustomed to living with before diagnosis anyway. The only real bother was when I took out a mortgage which was quickly resolved with a slightly larger payment to the insurance company!
The recent flare behaved quite differently. Different warning signs, more rashes, joint pain and concentration problems but no platelet involvement so I wouldn't say overall that it was any worse than last time.
Like your girlfriend I work full time, am very active and lead a normal life and I am happy to believe that this is as bad as it will get for me. I hope more than anything that I'm right. I have never considered "future-proofing" my life just in case, beyond the sensible plans that we should all make concerning Wills etc, as I know that SLE taking a turn for the worse is just another "what-if" along with being wiped out by an irresponsible motorist on my daily commute!
You sound very well-informed and it's a delight to hear a partner taking such a pro-active role. It took me a while to relax and let my boyfriend support me, but his care and love goes a very long to way to making me feel better, and what you're doing is very special indeed.
I hope that your girlfriend is as lucky as I have been.
Freya
I am content to describe my Lupus as "mild" and I am currently experiencing only my second significant flare since I was first diagnosed 10 years ago.
The first flare in my early 20's primarily affected my platelets, took about 2 years to settle down and I then had 8 years mostly symptom-free (and drug-free). I stopped thinking about Lupus all together, occasional aches, fatigue and migraines were something I was accustomed to living with before diagnosis anyway. The only real bother was when I took out a mortgage which was quickly resolved with a slightly larger payment to the insurance company!
The recent flare behaved quite differently. Different warning signs, more rashes, joint pain and concentration problems but no platelet involvement so I wouldn't say overall that it was any worse than last time.
Like your girlfriend I work full time, am very active and lead a normal life and I am happy to believe that this is as bad as it will get for me. I hope more than anything that I'm right. I have never considered "future-proofing" my life just in case, beyond the sensible plans that we should all make concerning Wills etc, as I know that SLE taking a turn for the worse is just another "what-if" along with being wiped out by an irresponsible motorist on my daily commute!
You sound very well-informed and it's a delight to hear a partner taking such a pro-active role. It took me a while to relax and let my boyfriend support me, but his care and love goes a very long to way to making me feel better, and what you're doing is very special indeed.
I hope that your girlfriend is as lucky as I have been.
Freya