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154 Posts
Okay so this is EXTREMELY weird but I have this irrational hatred of all medicine I HATE putting chemicals in my body, maybe it's because I've had to do it so often since I was 9, but I'm wondering if this completely ridiculous hatred of meds may contribute to nothing ever working on me lol, because I always manage to convince myself that everything I'm on sucks, that I'm going to get horrible side effects, and then, shockingly, I get horrible side effects and it doesn't work.
Weirdly, Rituxan worked for me dispite my odd mental issue about meds. But my doctor forced me onto plaquenil even though I'm in remission, and first I was so side-effecty that I missed a TON of school, then I stopped and started again over winter break and then I missed all last week being dizzy and nauseous (I swear I was trying to think positive!) but my doctor took me back off of it. ANYHOW apart from teh side effects, my lupus regressed when I was on plaq, can my brain really do that?? I mean, it seems weird that a lupus med would make my lupus worse, could be coincidence, could be just me being WEIRD, and this is a very weird post, and I think I've passed the point of making sense long ago, so I'll leave it at that.
Weirdly, Rituxan worked for me dispite my odd mental issue about meds. But my doctor forced me onto plaquenil even though I'm in remission, and first I was so side-effecty that I missed a TON of school, then I stopped and started again over winter break and then I missed all last week being dizzy and nauseous (I swear I was trying to think positive!) but my doctor took me back off of it. ANYHOW apart from teh side effects, my lupus regressed when I was on plaq, can my brain really do that?? I mean, it seems weird that a lupus med would make my lupus worse, could be coincidence, could be just me being WEIRD, and this is a very weird post, and I think I've passed the point of making sense long ago, so I'll leave it at that.