So it's looking more and more like the rituximab hasn't worked, or at least it hasn't worked as well as I'd hoped. I mentioned the facial rash to my doctor's secretary, and was yoinked in for more blood tests (hopefully I'll hear at the end of the week how they're looking). I've got the rash, muscle pain, protein back where it shouldn't be, puffy eyelids, no appetite (I've got very little weight to lose!) and am generally feeling ick.
Will this sodding disease ever go away!? I've been on most of the available drugs - they either don't work or my bone marrow has a hissy fit. The only thing that works well is pred, I suppose I might as well resign myself to being on that forever. The only thing I haven't had is cyclophosphamide and I don't want it, I don't want it, I don't want it (she says stamping her foot). Grrrrrr.
Feeling a bit better now I've got that out of my system - cheers :hehe:
Will this sodding disease ever go away!? I've been on most of the available drugs - they either don't work or my bone marrow has a hissy fit. The only thing that works well is pred, I suppose I might as well resign myself to being on that forever. The only thing I haven't had is cyclophosphamide and I don't want it, I don't want it, I don't want it (she says stamping her foot). Grrrrrr.
Feeling a bit better now I've got that out of my system - cheers :hehe: