Hi everyone,
I'm new to this site, and I should have joined years ago. After lots of tests, appointments with the rheumatologist and more tests, I was given a diagnosis of Mixed Connective Tissue Disease. I also went for tests abroad and I was diagnosed with having SLE. I took the results back to my own specialist and he said, I think you could have Lupus and most of your symptoms are saying you have it, but some of your other symptoms mimic other connective tissue diseases, so he diagnosed me with having the mixed connective tissue disease.
What else can I do, he thinks it is Lupus, but not prepared to diagnose me, I'm not feeling I can cope at the moment, and am feeling so low about this, I feel as if I'm not in control of my own life at the moment, and keep forgetting really simple things. I just feel like I have nowhere to turn and that no one understands what I'm going through, I have great friends, but I don't feel they really understand, and I don't want to go on about it all the time, I try and keep myself healthy through exercise and diet, keeping my mind active, I work and I'm studying, but I just need advice on what I should do, from someone who can empathise with what I'm going through, as I'm not coping too well.
Thanks Vicky
I'm new to this site, and I should have joined years ago. After lots of tests, appointments with the rheumatologist and more tests, I was given a diagnosis of Mixed Connective Tissue Disease. I also went for tests abroad and I was diagnosed with having SLE. I took the results back to my own specialist and he said, I think you could have Lupus and most of your symptoms are saying you have it, but some of your other symptoms mimic other connective tissue diseases, so he diagnosed me with having the mixed connective tissue disease.
What else can I do, he thinks it is Lupus, but not prepared to diagnose me, I'm not feeling I can cope at the moment, and am feeling so low about this, I feel as if I'm not in control of my own life at the moment, and keep forgetting really simple things. I just feel like I have nowhere to turn and that no one understands what I'm going through, I have great friends, but I don't feel they really understand, and I don't want to go on about it all the time, I try and keep myself healthy through exercise and diet, keeping my mind active, I work and I'm studying, but I just need advice on what I should do, from someone who can empathise with what I'm going through, as I'm not coping too well.
Thanks Vicky