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Hello Vicky and glad to have you here.

Kaharine is so right the treatment etc. should be much the same whatever the dx. Antimalarials are always the best starting point. I take mapacrine, the older version of Plaquenil which I am allergic to. I wonder if this would benefit you without upsetting your skin.

Certainly you need to learn all you can about Lupus/ Mixed connective (or undifferentiated) tissue disease.

It sounds to me as if you are doing far too much in order to keep going. Whatever way you look at this you are ill and have a perfect right to downsize where you can.

Also, the problems you have, no matter what you call them, may well mean that you would qualify for some rate of DLA,why not try. It is a real help, although some times hard to get.
x Lola
 
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