The Lupus Forum banner

MMF/Cellcept side effects

535 Views 8 Replies 8 Participants Last post by  dmb 123
I was diagnosed with SLE four years ago and have been taking Methotrexate 25mg injection per week, prednisolone, plaquenil as well as many other meds. The steroids were starting to cause a lot of bad side effects so I was tapered down to a low dose which subsequently flared my Lupus, Sjorgens and Raynauds.

My doctor started me on Cellcept a few weeks ago and I am having serious stomach issues with it. I feel as though I have had a gastric bypass as my stomach is so inflamed and I cannot manage more than a few mouthfulls of food. In the last few days I have also started vomitting, although I feel much better after doing so. I am persisting with the cellcept as I know I have to stop my immune system working overtime.

The nurse who gave me my education before taking cellcept told me I MUST take the cellcept with food. However, I have noticed one or two people on these boards have advised otherwise.

I am also extremely tired with the cellcept and am falling asleep many times during the day.

Any advise would be gratefully received.
1 - 1 of 9 Posts
Hi Donna,

I am sorry to hear you are having such a time taking cellcept. I take 1500mg,
two pills in the morning ( alarm gets me up at 8:00 I take two pills and drink lots of water and go back to sleep. I tale the last pill around nine oclock at night on an empry stomach with lots of water. I did experience some nausea but quickly got used to it.

I started on metho and prednisone with no result except I couldn't breath. Doc switched me to immuran and tapered very slowly the prednisone with mixed results.
My sed-rate still stayed in the 80's and 90's. Doc then started me on cellcept and it has dropped my sed-rate into the high 30's, low 40's. I think this is the best I have felt in twelve years.

I know that different meds work differently with how you take it and how you react to the side effects. I have had few side effects with the cellcept.

I hope you will give it a chance.

With best wishes for better health, TAB
See less See more
1 - 1 of 9 Posts
This is an older thread, you may not receive a response, and could be reviving an old thread. Please consider creating a new thread.