MMF/Cellcept side effects

539 Views 8 Replies 8 Participants Last post by dmb 123, Mar 2, 2009

dmb 123

Discussion Starter · Mar 1, 2009

I was diagnosed with SLE four years ago and have been taking Methotrexate 25mg injection per week, prednisolone, plaquenil as well as many other meds. The steroids were starting to cause a lot of bad side effects so I was tapered down to a low dose which subsequently flared my Lupus, Sjorgens and Raynauds.

My doctor started me on Cellcept a few weeks ago and I am having serious stomach issues with it. I feel as though I have had a gastric bypass as my stomach is so inflamed and I cannot manage more than a few mouthfulls of food. In the last few days I have also started vomitting, although I feel much better after doing so. I am persisting with the cellcept as I know I have to stop my immune system working overtime.

The nurse who gave me my education before taking cellcept told me I MUST take the cellcept with food. However, I have noticed one or two people on these boards have advised otherwise.

I am also extremely tired with the cellcept and am falling asleep many times during the day.

Any advise would be gratefully received.

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lin

· #7 · Mar 2, 2009

steph, i only started a few weeks ago on this was on Aza before that for 4 yrs, well i take mine either just before brekie or aftwer depends how i feel, i am more sleepy and have had tummy cramps and hair is going mad again just like when i started the az drug, but i am not being sick with this one as yet, but ive only just gone up to 750mg twice a day. going up every two weeks

maybe if it carries on go see your gp, but it does say if this or that happens in the leaflet to seek help, other than that maybe you have just got ride the other symtoms out, as youre body will get use to it

only you know that good luck xx Lin

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