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More things to had to my Medi Alert Card and no diagnoses yet

362 Views 2 Replies 2 Participants Last post by  Gerri54
I suspected that I would not be diagnosed with celiac. The biopsies taken are from little areas of the small intestine and they don't show problems maybe further down the durderam (sp).

The Gastro doctor said likely just Gluten Intolerant, and to stay away from glutten if it makes me feel better. As sulfites is in everything I suppected when I started to eat lot more bread, pastas this caused major problems, and landed me in the hospital twice last month, and to Urgent care twice.

She said the major bloating is from my diabetis. This I do not believe.(My diabetis is supposedly not controlled), which no doctor is putting me on medicine for. Last test showed it was within normal range, and my liver enzymes are totally out of whack again.

The Gastro doctor said likely just Gluten Intolerant, and to stay away from glutten if it makes me feel better.

She confirmed Acid Reflux with inflammation, which she seen on the way through with the scope. Acid reflux I've had for over 30 years.

She said I have an Hiatus Hernia. (this is new)

She confirmed I have Irritable bowel Syndrome, which I have already been diagnosed with, 30 years ago.

My hands, arms, eyes and face are bloated. I woke up last night with so such pain in my stomach. Since stopping the gluten my stomach has gone done, and I have lost 10 lbs.

I am in pain all over. I am so tired, and getting no where fast, with any diagnoses. I asked about Lupus, she said she was only asked to do biopsy for celiac, and so didn't check me out for Lupus, or even really check me out for any other problems, that maybe going on in my esophogus, or stomach.

Hugs

Gerri
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Gerri,

I am sorry your not feeling well. Maybe you should go to a dermatologist for a skin biopsy to see if Discoid lupus is detected.

I sure hope you get feeling better with less pain.

Keep your chin up my friend.:wink2::wink2::wink2:
Hi Karol,

I am going to an alternative doctor in January. My family doctor won't send me anywhere. Another friend of mine thinks I may have major thyroid problems, because of adrenal fatigure. (have cyst on adrenal gland) I asked family doctor to check this out, and he ignored me. I asked to be sent to a dermatologist over a year ago, well I am still waiting. I was to be sent to and endrocrinologist, and twice he ignored the GASTRO doctors orders.

Gastro doctor says I have to get my weight down. I lost 10 lbs after stopping Gluten. I eat next to nothing. Most likely you eat more than I do. I do as much exercise as I can, and feel up to doing.

So so frustrated. Thanks for being there for me.

Hugs

Gerri
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