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I'm in the middle of the diagnosis process - Had a positive ANA test, waiting for the results of the next round of tests. Have been on medical leave for the past 3 months with severe exhaustion.

But! I need to move in the next two months or so to CA - Silicon Valley area. My significant other lost his job, and his new job is in CA. If I weren't in the middle of trying to nail down a diagnosis, we'd both be very happy about this.

I'm looking for ideas on how to not lose momentum on diagnosis and treatment.
Any ideas on locating a good rheumatologist in my new location? (Private messages if you have a recommendation and don't want to post publically.)

Obviously I can get copies of my medical records so far, but what else would be helpful?

Can I book appointments before I move? I'm worried that it takes so long to get to see a specialist, that I will be set back in getting a diagnosis.

All ideas greatly welcomed!
 

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HIya, the usual advice is take photos of any physical rashes, swollen joints etc, do a daily diary logging all your painful areas out of ten. Take someone with you who knows the 'real' you..we all put on a smile for the Dr!! Impress upon the Rheumy exactly how it is for you..be quite definite. Hopefully somebody local to you can recommend a rheumy who is proficient in auto immune disease.... some don't know a jot! I wish you the best on your journey.
Claire X
 

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Welcome to the site.

You can make a meet and greet appointment prior to moving if you know the name of a good rheumatologist in the area. Ask your doctor if he knows of someone reputable to refer you to.

The wait might be long but you might want to try one of the rheumatologists at Standford University Medical Center. They are particpants in many of the Lupus studies and are up on all the latest advances.

Another doctor in the Palo Alto area is Christine Thornton. I don't know her personally but know of her since she was a cyclist in the last Olympics. Christine is not only a rheumatologist she also suffers from Lupus.

Good luck with your move,
Lazylegs
 

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Thanks - I was just starting to look at the people at Stanford. Good advice from all.

It is really frustrating to change horses in mid-stream. But, we gotta do what we gotta do.
 

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:there: Oh boy, can I relate to what you are going through. I just moved from Colorado to Philadelphia 12/08, and am still getting my medical care situated.

I was able to make an appt with my new rheumatologist two weeks prior to even moving. I did call my insurance compay to verify there was coverage. I have an HMO, so had to go to a doctor in their network, but out of state did not bother them a bit.

The rheumy sent me off to a whole host of other specialists. Even though I was diagnosed with lupus in 2004 after being desperatly ill for several years prior to that, we re ran all the other tests to make sure it wasn't MS. It did not seem to matter one bit that I had all of these tests performed previously by other doctors. They all needed to run their own tests again to satisfy their need to confirm my diagnosis.

That being said, I don't know that being mid diagnosis will change anything that much for you.

I did reseach all the area hospitals before I moved, and made sure we moved close by my hospital of choice. The pre planning and researching have really paid off, and made the move much easier. I landed in the hospital two days after moving, and having a doctor on staff that knew my history really helped out.

Be kind to yourself during this transition - it is stressfull for even the healthiest of individuals. :)
 

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I think you have been given good advice here along with the name of a doctor who treats and also has Lupus................that is awesome as this is someone who knows Lupus first hand.

I wish you luck with your move. California sounds much nicer then South Jersey.......ahhhhhhh, I can dream can't I?:lol::lol::lol:

I wish you luck with the move and finding a new doctor. Please keep us posted as to how you make out moving ahead and good luck to you.:wink2:
 

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The Other Illinois Tammy
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I would hope that you could talk to your current doctor about this and that he could give you some ideas. It is helpful if the current doctor can refer you and that they can communicate with each other for the first month or so. If your doctor has no ideas than ask if he would be willing to talk to the new doctor that you find and give all the information to keep your dx and treatment going.

When you do find a new doctor make sure that it is one that is willing to talk to your old one and work with him. This way you have the avenues open on both ends.

I hope that your move goes well and you find all the help you need to keep up your treatment. Good luck with your move and with your treatment (it is a new life for you and remember the sun). Be well and feel well.
 
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