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Life as a lupie is never dull, and just when I think I have been through it all, something new comes along.

I have recently moved from Denver to Philadelphia, and am in the process of changing over my doctors. If you have ever gone through this before, you know that no matter how many previous records you bring, a new doctor will insist on performing diagnostic tests themselves. My new nuero is no exception.

This week, I am having a three day EEG, to see if I am having seizures. I have never had seizures, never complained of them, but it's a test that has not been performed yet, and I think he was stretching to find something new. :huh:

On Tuesday, I went into a lab to have electrodes glued to my head, and two to my upper back. After this process, the technician took all of my long hair, pulled it straight up with the leads from the electrodes, and wrapped it all in gauze. I do not exaggerate - I am now a Conehead! :hehe:

All the leads hook into a primary wire, which is connected to a portable recorder that hangs from my waist in a fanny pack. I also have a small video device that plugs into the recorder to video tape me while I sleep. Oh joy - a visual record of this - yikes! :eek:

I am not allowed to bathe or shower - sponge bath only. So not only do I look ridiculous, I smell too! :smirk: My dignity is in shambles on the floor. I wrapped a pretty scarf around the contraption, but it just accentuates how weird I look.

The only good thing coming out of this is my husband is out of town this week on a business conference! If he saw me like this, I would never live it down! But alas, we live in a high rise apartment now, and someone (me, Mrs. Conehead) has to walk the dog! I'm sure the front desk staff are wondering why I sneak out the side door and go skulking around. :ashamed:

I get this gastly thing off tomorrow morning, thank goodness, but still one more day to endure. I refuse to go anywhere looking like this, so one more day of self imposed shut in. I sure hope this doctor gets what he is looking for, because I'm not going to suffer this indignity again! Did I mention I am flaring?

Mepps, mepps, I'm going to consume mass quanties... (from Saturday Night Live, for all you youngsters) :lol:
 

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Hi Tracy,

Now, I am sure you didn't really mean to make us laugh, and I assure you, you have my every sympathy, but that description is just hilarious.

Anyways, I suppose that the best that can be said for such things is that they do end pretty quickly and you'll then be back to normal, all washed and smelling lovely with locks flowing in the wind.

Bye for now and hugs,
Katharine
 

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Tracy

You can always walk around saying "I'm from France" in a nasal mechanical voice!

I am a 1978 - 1982 watcher of SNL - I think those were the best years ever!

Hope all comes out well with the test and that actually find nothing as sezures are no fun at all!

Stephanie
 

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Tracy,

I want to thank you for making me laugh. I needed too, and badly. :)

I do feel for you..Is it hard to sleep, with all that on your head? Hope not!

Enjoy..your first bathe..when you get your cone head off!

love,
Sandy
 

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Hi Tracy,

Sorry you have to go threw this. You are right new doctors always have to have their own tests done.

Then add flaring to it.:hug::hug:
Thankfully tomorrow is only a few hours away.

Hang in there.

Lyn
 

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Tracy,
All I can say is that I feel for you. I am glad your hubby did not get that picture in his head it sounds like he would of had a lot of fun with it. I still have to ask if you had no signs or even any problems in this area why would they even do the test, something you might ask the doctor when you see him. I have had to do the same thing and like you was not showing any signs of anything that would of called for this treatment.
It makes me wonder if some new doctors look in the chart to see what we have not had done and see if they can talk us into it knowing that there is a factor of imbursment in the test in the first place?
Well, glad you survived it and seem to be better now I hope.
Tammy
 

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Time spent as a Conehead

Hi Tracy,

Thanks for the laugh. It's a comfort to know that there are worse indignities out there than enemas and colonoscopies!

I will be sure to avoid this one, if I ever see it coming! Don't scare the dog.

love Rose
 
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