Went to see my consultant first day, Lisa my daughter came with me, alway's a wait there,at mri hospital but always someone to chat too,
Dr as upped my prednislone to 30mg for a month, and i thought i might come down them, He had bloods done again, want's the mri scan results from my local hospital, he thinks Azathioprine is not working now, So when back in one month he is to review things again,
Wants to change i think he said to a drug begining with m mofetil something like that, but first said he may give me cyclophosphamide,by drip or did he say injection over a few months every two weeks,
Lisa as to remember all this to tell steve, he thinks all thats gone on as made things worse, said need to get inflamation under control . will see.
Neuro, Lisa came yet again, bless and her a nurse on annual leave ,this time it was early, so that was good, on time , we were in and out, Lisa also thought he was good dr, he's writing to gp, upping the drug Keppra to 1000 at night, 750 is what im on at the moment twice a day, so up from 750 at night to 1000, then after xmas up to 1000 moning aswell, doing it slowly, as it will knock me out me sleepy, then can up again a little more if needeed, and said dont worry if it doesnt suit we can change, he commented that i had already gone threw about 4 different ones, i said tel me about it........
thanks for always being here to listen to my moans, and tammy thank you for being there too mate
Lin xxxxxxxxxxxxxxx
Dr as upped my prednislone to 30mg for a month, and i thought i might come down them, He had bloods done again, want's the mri scan results from my local hospital, he thinks Azathioprine is not working now, So when back in one month he is to review things again,
Wants to change i think he said to a drug begining with m mofetil something like that, but first said he may give me cyclophosphamide,by drip or did he say injection over a few months every two weeks,
Lisa as to remember all this to tell steve, he thinks all thats gone on as made things worse, said need to get inflamation under control . will see.
Neuro, Lisa came yet again, bless and her a nurse on annual leave ,this time it was early, so that was good, on time , we were in and out, Lisa also thought he was good dr, he's writing to gp, upping the drug Keppra to 1000 at night, 750 is what im on at the moment twice a day, so up from 750 at night to 1000, then after xmas up to 1000 moning aswell, doing it slowly, as it will knock me out me sleepy, then can up again a little more if needeed, and said dont worry if it doesnt suit we can change, he commented that i had already gone threw about 4 different ones, i said tel me about it........
thanks for always being here to listen to my moans, and tammy thank you for being there too mate
Lin xxxxxxxxxxxxxxx
