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My husband has just been!

318 Views 11 Replies 11 Participants Last post by  Monica3
My husband has just been diagnosed with Lupus. I am very worried and it all seems to be a very serious complicated condition. I am very scared of what treatment he is having as he says it all just seems like big words. He has quite severe kidney involvement and is awaiting results of a biopsy. He has already had 3 IV bags of steriods which havn't seemed to have much effect on reducing something in his blood which was 80, then went to 160 and then to 200 (I'm not sure what this is) but it was indicating that inflammation in his kidneys was very high. He is now undergoing Chemotherapy. I'm so worried can anyone talk to me about this, has anyone been through the same symptoms? He has headaches, muscle aches, fatigue and slight nausea.
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Hi Jan,

Was dx about 10 years ago. With most people after the doc's get the disease under control your husband will be put on numerous drugs ( I call it the magic cocktail ...we are all different in which drugs work best) and will probably go through alot of testing. Once the drugs start to work about 90 percent of people go on to live a relatively normal life. His symptoms (except the kidney involvement) are very normal. With out the name of the blood work I can't help you. Read all the info you can about the disease and educate yourself so you can talk to doctors more intellegently. Never start dxing him will just drive yourself nuts and worry for no reason.

As the others have said he is in the best place. Also take care of yourself. There is so much info on this site and the people here have so much knowlege and are so willing to help. And as recommened by others check out the section..Men with lupus. I have not been on for awhile but when I was DX'd chat helped me out alot. There also may be a lupus support group close to you where you can talk to others that have lupus or have loved ones with lupus.

I will keep you and your husband in my prayers.

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