If I didn't have this board and my husband I think i may have gone mad.Saw the immunologist this morning.I can say he was rather unpleasant and that would be an understatement and yes,he reduced me to tears
I went in and he said I had fibromyalgia,good..a diagnosis at least.Not a surprise though .He said that he couldn't believe that none of the specialists I had seen before hadn't mentioned it..well,you'd better believe it
and it would have saved me a lot of time,money and trouble if they had.He said that fibro is often found in people with low self esteem,yes..I'll give him that...who are perfectionists and like thngs 'just so'.That is so much not me.He then said I had caused this myself
because I pushed myself when I was younger as I was a swimmer and an athlete,at this point I wanted to deck him and worse...that I would cause it in my children by projection
:tears::screamin::grrr::wall: He must be related to my G.P who said I was looking for a cause for my symptoms through my children when my youngest had been ill.He said that I wouldn't have had glandular fever at 13 it would have been the fibro starting,I have to point out I was not an olympic athlete or anything.So I said ,so I won't ever be fit enough for work?to which he answered 'no'.So in this small consultation,I not only have a self-inflicted illness,I will also make my children ill in some subconscious way and that is the end of my career:huh::?There is no magic cure,there was no talk about treatment apart from anti depressants and cognitive behavioural therapy.He said it was normal to have a raised rheumatoid factor at 37,or even an ANA at my grand age,it means nothing apparently.
I showed him photos of my skin to which he said was urticaria,strange,the consultant at the lupus clinic did not rule out s- acute cutaneous lupus.He said a biopsy was pointless.I showed him your skin photo Claire,from the lupus newsletter,as mine is like yours,but he said yours would scar but mine didn't therefore it wasn't s- acute cutaneous Lupus?
All in all a very depressing visit.I did stand up for my self though.He thought his being blunt was a a good quality and it is in a way,but I said there are ways of telling people and he had been plain horrible.His manner was patronising,he didn't want to know my past history'now tell me your present symptoms with no embellishments'was one of the first things he said,and lots of I'm not going to even go down that road with you if I asked him a question,hhmmph,sorry about the long post...is anyone still there?:blush:
Julsie
Best of all,he said I was a twit for seeing other consultants to try to find out what was wrong with me
a*******
I went in and he said I had fibromyalgia,good..a diagnosis at least.Not a surprise though .He said that he couldn't believe that none of the specialists I had seen before hadn't mentioned it..well,you'd better believe it
I showed him photos of my skin to which he said was urticaria,strange,the consultant at the lupus clinic did not rule out s- acute cutaneous lupus.He said a biopsy was pointless.I showed him your skin photo Claire,from the lupus newsletter,as mine is like yours,but he said yours would scar but mine didn't therefore it wasn't s- acute cutaneous Lupus?
All in all a very depressing visit.I did stand up for my self though.He thought his being blunt was a a good quality and it is in a way,but I said there are ways of telling people and he had been plain horrible.His manner was patronising,he didn't want to know my past history'now tell me your present symptoms with no embellishments'was one of the first things he said,and lots of I'm not going to even go down that road with you if I asked him a question,hhmmph,sorry about the long post...is anyone still there?:blush:
Julsie
Best of all,he said I was a twit for seeing other consultants to try to find out what was wrong with me