Joined
·
29 Posts
It's taken awhile, but I think I have a good list of what makes my life somewhat easier with this heavy cross we must bear!
1. Most important to me is to find a team of doctors that you really are comfortable with, trust, and you two are in sync with each other, and they in sync with each other as well (aka they communicate with each other on their findings and their thoughts so you always know that the information you're receiving is not just one sided)! This is very hard to do, and can take years to find! But once you do, a big burden will be taken off of your shoulders! Also, another factor of a good doctor is his/her LOVE for tests, tests, and more testing! That, to me, proves s/he really wants to pin point exactly the issue, without doing you more harm then good by jumping the gun!
-----
Now the fun stuff
For the summer time:
2. A great makeup foundation/concealer for those pesky rash!
3. A great SPF to keep the sun at bay!
4. A great sun hat for even more ammo against the sun!
For the winter time:
5. Handwarmers (those little individual packs that you open to activate) to keep the raynauld's away!
6. A great heated mattress pads to keep your toes from turning blue!
7. Thick flannel sheets that are velvety soft!
8. A nice down comforter!
For all the time:
9. A great lotion! (Now that I know my rashes arent from an "allergic reaction" to scented lotion, but instead to the sun, I have a HUGE collection of frangrant skin lotion, esp. from bath and body works! ahhhh the joy of wearing scented lotion again!) Vanilla Noel is my hands down favorite! Smells like cotton candy! lol
10. A great moisturize4r! I just discovered SHEA BUTTER! Great for the hair and my chapped lips too!
11. A great moisturizing body wash! I'm loving Bath and Body work Tru Spa Shea body wash right now! Light crisp lemony scent, with tons of mositurizing agents!
Okay... YOURE TURN!! What makes youre life easier?!
PS... o yeah... I forgot the bottles of pills that makes my life easier too... lol
1. Most important to me is to find a team of doctors that you really are comfortable with, trust, and you two are in sync with each other, and they in sync with each other as well (aka they communicate with each other on their findings and their thoughts so you always know that the information you're receiving is not just one sided)! This is very hard to do, and can take years to find! But once you do, a big burden will be taken off of your shoulders! Also, another factor of a good doctor is his/her LOVE for tests, tests, and more testing! That, to me, proves s/he really wants to pin point exactly the issue, without doing you more harm then good by jumping the gun!
-----
Now the fun stuff
For the summer time:
2. A great makeup foundation/concealer for those pesky rash!
3. A great SPF to keep the sun at bay!
4. A great sun hat for even more ammo against the sun!
For the winter time:
5. Handwarmers (those little individual packs that you open to activate) to keep the raynauld's away!
6. A great heated mattress pads to keep your toes from turning blue!
7. Thick flannel sheets that are velvety soft!
8. A nice down comforter!
For all the time:
9. A great lotion! (Now that I know my rashes arent from an "allergic reaction" to scented lotion, but instead to the sun, I have a HUGE collection of frangrant skin lotion, esp. from bath and body works! ahhhh the joy of wearing scented lotion again!) Vanilla Noel is my hands down favorite! Smells like cotton candy! lol
10. A great moisturize4r! I just discovered SHEA BUTTER! Great for the hair and my chapped lips too!
11. A great moisturizing body wash! I'm loving Bath and Body work Tru Spa Shea body wash right now! Light crisp lemony scent, with tons of mositurizing agents!
Okay... YOURE TURN!! What makes youre life easier?!
PS... o yeah... I forgot the bottles of pills that makes my life easier too... lol