[Viridian]

Ok, didn't want to hijack another thread so made this one instead.
It took me a lot of thought whether to posts my pics in my sig as they are...well...embarassing. The only thing that is normally noticible is my face as I wear appropriate clothing when I have the rash on my chest, noone sees in my mouth and I have very long hair that does a good job covering up patches of baldness, so I found this very weird, but my 'illness' and quest to find answers has overcome my modesty/dignity right now!
I'd like to know what peoples thoughts are on the pics. Whether that's for or against any lupus, etc. arguements, I dont mind, but please be nice! :blush:
The thing with the rash on my chest/abdomen is that it has a very spotty border (not white, but red raised instead), and I dont see this in any lupus related rashes that I've viewed on the internet. It flares up so it's all red, then clears in the middle (spotty border), then flares again, etc. etc.
Dont get me wrong, I'm still going to a dermy, and to London. Just want to see whether it's similar to others.
Feel free to ask any questions.


Btw - Onetay -

Viridian,
It sure looks like me most of the time and I have sle. I hope you keep looking for your answers also. Do you have anything else like fatigue going on? I hope it was okay that I did view the photos. I just wondered if you skin looked like mine. All I can say it mine gets a lot thicker with the rash.I hope you feel better soon.
Tammy

Yes, I have lots of other things going on including terrible fatigue, pains, aches, etc. but I just dont know whether they are all related or not! When you say 'thicker', do you mean raised, or like there is a 'top' on it, or what? And is yours spotty on the edges/front, and does it move across/up/down your body? Sorry for firing so many questions back!
Thanks!

 

[neongirl]

For what it's worth, I have had sores like that in my mouth and the face rash looks like what I get. As for the other rash, I haven't had one like that. My DX is SLE. I hope you are able to find some relief and help soon

 

[Clare.T]

Hello Viridian

It is usually not much use comparing one's own skin to other people's because there are many conditions that resemble lupus skin and vice versa and atypical everythings. And of course people with lupus skin can get other skin problems! So it can only be speculation.
Do not wear make up or nail polish for the consultation. You can take it off in the washroom if you don't want to appear without it to the outside public.

I think your fingerends/nails look of possible interest and the facial rash. Maybe the ear lobe - is that all red and swollen ? Is it your 'driving' side and not covered usually by hair?

I suggest you take your photos off your signature at this point and put them into the text as is suitable otherwise we are going to get comments on your skin throughout the forum for eternity !:hehe: Lovely pictures as they are!


Clare

 

[Viridian]

Point taken Clare!


Some Pics of what's been happening to my skin, nails and hair recently. Wish I'd thought to start taking them years ago!
http://s9.photobucket.com/albums/a78/seskauk/Skin%20Pics/

And I've only worn make-up, etc. once every six to 12 months in the last few years because I've been so scared of setting something off or too tired to be bothered, so that wont be a problem when I go!
Cant drive either-when I decided to I was diagnosed with petit mal epilepsy and had to wait, and now I've had 'vision' disturbances (hopefully migraine auras)- so that's not my driving side, but both ears can get like that when I'm really hot. The thing with that photo (and it's not too clear) is the spots behind it running down my neck. I'd been out all morning, in the sun, and want to find out from the dermy if that's significant.

 

[Apryl1980]

What does your Dermatologist say about the rash? I have a rash similar to the one you are speaking of. It started out as red circles then started to have a clear middle. They kept spreading and spreading and getting bigger and bigger. I went to the Dermatologist and he took a punch biopsy. It came back as something called Erythema annulare centrifugum. It can be caused by many different things, infection, fungus, Medications (hydroxychloriquine being one) and lupus or other auto immune diseases. It can last a short period or last for years. I hate to see people in pain and discomfort, knowing how awful it feels and not always knowing what is going on or why. I hope this helps some!

Apryl

 

[Viridian]

Thanks Apryl!
Haven't seen the dermy yet but will update once I know what it is. I remember seeing yours but thinking yours looked a lot 'rounder' than mine, and not 'spotted' on the 'front/outside'. Lol!
It will be interesting to see what happens. I went to a dermy years ago about a rash that covered me from neck to toe (small red bumps all over and at it's worse, not an inch between each spot!), and very itchy at times. He took a very quick look and then said it was scabies!
Now, the gp had already given me two lots of scabies cream, 'just in case', and I'd had scabies a few years before so I knew what it looked (and felt) like. Also, noone else in the house had a rash at all. I used the cream again, and it didn't help. After several months, the rash went by itself.
Anyway, he made me feel very bad and I never went to him again. For the last 5-6 yrs I've had these rashes, and while they go in time, at least one new patch will start before the last one has gone. I've only ever seen my gp about them, and he used to give me steroid creams (sometimes worked, sometimes didn't). He also did skin scrapings a few times which came back neg for fungal infection, etc. Now I have my new gp, and after several courses of anti-fungal tablets and cream (in case it's ringworm), we agreed to see a dermy again. I'm pretty sure this guy is a different one to the one I saw before though so fingers crossed!
I am hoping that he'll do a biopsy. It's so frustrating!

Glad you got your results, and can start treatment! And I hope you feel better soon