That photo of me is one of the grimmest ever.
My DD rushed in one morning without previous notice with a 'few minutes to spare' to take photos without make up for the article that was in the Newsletter. I had been asking her for weeks and the article deadline was already gone. I asked for one of me made up, "Well OK", but "be quick, very quick" So what usually takes 15 mins took about 15 seconds. I am going to see if I can get it changed for a more flattering one. ( No comments please !
I will put the ones of my lupus skin on my Album when I can remember how to do it. They are really scary :lol:
Its lovely to read your story and all the others. I havent got through them all yet but Im diligently ploughing my way...
I know you said no comments but I couldnt resist. Thats a lovely photo. I know from looking at my own photos how much I hate them but its amazing the things we see in our images that others dont even notice. Your hair is extremely similar to mine except Im completely white at this stage.
You have very kind eyes by the way but dont tell anyone I said that!
Clare, you're beautiful! And I finally know all of your story. I agree with Lily that's it's wonderful to finally put a face (and a lovely one at that) to the person with whom I've had wonderful chats.
Maybe someday I'll be brave and post a photo of myself. ..... Maybe not.:lol:
I thank you for your story Your picture looks great and now there is a lovely face to go with your name. Even if I knew how to post pictures, I am not brave enough to put my mug up:lol: Right now my face looks like a tomatoe It seems to always get worse in this weather, no matter what I do.
Thank you all for your kind comments and generous spirit.
Lola please tell Immi I am really sorry she was shocked if that means she was upset by the pictures without make up, in the Newsletter. Hugs for Immi. Please tell her I am OK with it nowadays. In fact I feel objective about it having seen my own lupus face as a slide in a professional lecture given by my doctor, before treatment and after.
I did wonder how I would react to that but it was fine and I liked to think that it was educating other doctors.
I myself am shocked when I see some of the pictures on the lupus skin picture sites. Not only because of those people's suffering but because almost certainly they would not have got to such a bad stage if they could have accessed timely effective treatment. Angie chose not to put the most severe pictures into the article and commented to me how grim they were. I wondered vaguely if she would have rejected mine before treatment as not fit for the general public.
Somehow this amuses me in a puzzled way.
People can write about how ill they are which can't be shown in pictures. Of course we know all about the ravages of systemic disease and we comment how other people don't understand invisible illness.
What's going on inside that can't be seen is really much more horrifying when you think about it, but lacks visual impact.