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Hey out there,
My name is Caroline. I am 38. I have had Lupus for 25 years. For the first 15 years my GPers kept me on large dosages of prednisone (40-60mg per day) they were not very knowledgeable about lupus and prednisone and neither was I.
As a result of long term use of prednisone, My joints are necrotic (dead bone) it is very painful. I take vicodin several times a day. I have had my hip replaced when the bone structure calapsed. I had to have 3 replacement surgeries because it got infected. Both my knees and shoulders are necrotic also, luckly they have not calapsed so I haven't had to replace them, but I expect to have to do this at some point. My current doctor for the last 6+ years has decreased my prednisone to 16mg so far:hehe: , but when she tries to reduce it further, I have a lupus flare every time. She is a great doctor.
Has anybody been on prednisone for a very long time and suffers from necrotic bone or needed joint replacements?
I would love to hear from you!
Caroline
My name is Caroline. I am 38. I have had Lupus for 25 years. For the first 15 years my GPers kept me on large dosages of prednisone (40-60mg per day) they were not very knowledgeable about lupus and prednisone and neither was I.
As a result of long term use of prednisone, My joints are necrotic (dead bone) it is very painful. I take vicodin several times a day. I have had my hip replaced when the bone structure calapsed. I had to have 3 replacement surgeries because it got infected. Both my knees and shoulders are necrotic also, luckly they have not calapsed so I haven't had to replace them, but I expect to have to do this at some point. My current doctor for the last 6+ years has decreased my prednisone to 16mg so far:hehe: , but when she tries to reduce it further, I have a lupus flare every time. She is a great doctor.
Has anybody been on prednisone for a very long time and suffers from necrotic bone or needed joint replacements?
I would love to hear from you!
Caroline