[joirish]

Hi all,

Need lupus suffers help in making a decision!! I have gone beyond thinking straight!!!

I have had pain in my stomach since mid of July. Was admitted to hospital at the start of Sept and had loads of test done (query ulcers) but as this illness has shown me all tests came back CLEAR!!AHHH But I still have the pain and it getting worse......

Was at the doc on Monday am and got an anti-inflam injection was ok for most of the day but got bad later in the evening so went to our out-of-services GP and they gave me a Buscopan injection (and changed my meds again).

He thought it was an Ulcer but I explained to him wouldn’t they have seen that earlier in the month when they did the camera down my stomach????.I got some sleep on Monday nit after the injection, had a blood test taken on Tuesday at GP's to check for Pancreatitis (have to wait till Thur am for results).

But had a very bad night last nit(was still up at 3am with the pain) - everybody in my house couldn’t make a decision for me as I ALWAYS make them for my Lupus and of course most of the other stuff in the House...

I'm now in a situation where I can’t make up my mind-
Do I go back to the GP this afternoon?
Do I go to A+E if it gets bad again?
Or do I wait for results of blood test in the am?

Please help!!!
Any advice would be great
Jo

 

[KitKat]

Hmmmm,

I think I would plan to wait until blood results tomorrow but if the pain got agonising head to A+E or call and ambulance asap.

 

[Joandublin]

Oh dear Josephine

Im really sorry to hear how much pain you are in :sad: Its just very hard to advise anyone what to do. I think Kit's advice is sound though. If the pain levels are unbearable then really you have no option but to head to A & E - if nothing else they may be able to help more with the pain than your GP while you are waiting on those results.

Many gentle hugs Jo :hugbetter: :hugbetter: I sure hope this gets resolved very quickly for you. It sounds awful.

Please let us know how you are when you can.

Joan:rose:

 

[nicky00]

Just a thought Jo

but getting yourself to A&E might get you a 'second' if not 'third opinion'.

We get more than one opinion or quote even in other areas of our lives. dont we. Why not with regarding our health.

Hope you get some relief soon. Poor you

 

[joirish]

Thanks for replies

Hi all,

Ended up going to GP this afternoon as the pain got to bad. She gave me DF118 to see me throught till tomorrow. All my bloods have come back clear can you believe it!!! But i still have the pain so whats going on?????

Going back to GP again in am, need a def line to follow as this pain interfering in my life (had to cancel birthday dinner with my close friend this evening) and i mostly never leave lupus interfer with my everyday living if i can.

Will keep ye all informed but again A BIG THANK YOU for all yer kind words and encouragment....


xoxo

 

[Joandublin]

Hi again Jo

Im sorry you still have no clear answers but you are absolutely right in persuing this. Pain at that level has to have some explanation and its up to the medics to try and find out what is going on.

Incidentally what tests did you already have done?

Joan:rose:

 

[Zoi]

Hey Jo,

Glad to hear that the GP gave you something to help control your pain, but if the pain is so severe that it is interfering with your everyday life then it absolutely does sound like further investigation is needed to find out what is causing it...

I hope the GP has a plan of investigation for you tomorrow morning when you go back...

Hope the codeine helps you get some sleep tonight at least...

Zoi

Zoi

 

[joirish]

:hello:Hi,

Went back to GP yesterday am and got to see an older Doctor as there was a mix up re my appointment!!(could have let it bother me but was i too much pain just wanted to see somebody) it was if somebody was watching over me directing me to this Doctor.
He was the reason i change to this practise all those years ago
(as he had lupus patients).

Anyway, he has decided to stop the Circle, as we are going round and round. Not going to change my tablets anymore and going to write to Consultant that I saw in Hospital and get him to reassess my situation again, if needs be put me back in(have only recently started to use my private health insurance have had it all the time) but have stayed in the public system as Lupus Clinic in that system.

Just giving me the strong painkillers for now which def help with the pain. So now just have to wait for letter to get to Consultant. Feeling very positive now as this Consultant young and listens. Also, my doctor told me to just remember that i have the pain even though all test back clear. I can sometimes doubt myself, which is MADNESS! its all so like pre-Lupus dix.

Joan: I had the camera down the throat to the stomach, barium swallow and 2 CT scans of the upper part of the body and they all came clear while in Hospital.

:grouphug2:
Sending everbody lots of hug and love,

 

[Joandublin]

Hiya Jo

I am so very pleased for you about the GP coincidence Although maybe coincidence is not the right word - more like fate

I am so glad he is taking this in hand for you and getting it sorted. Having your GP as a strong advocate is absolutely excellent news. No wonder you sound more cheery.

Keep taking those painkillers in the meantime and I hope you get a quick appointment.

By the way did you ever have an ultrasound done on your gallbladder? Just a thought. I had an upper body CT and endosocopy done with clear results and it was only an ultrasound which showed up 'a bag of gallstones' (technicians words!) in my gallbladder. I had horrendous pain in my stomach at the time - the kind of pain that would send you rolling on the floor.

Anyway Im sure they have probably investigated this already but I just thought I would throw it in anyway!

Let us know how you are and if you have any updates
Luv n stuff
Joan:rose:

 

[acard]

Hi
Joan is absolutely right, because same exact thing with me. My gallstones were missed with the ct scan, but caught by the ultasound. Those gallstones were so very painful, that I rate them up in top 5 most painful conditions:worried: So you really should see how you can get an ultrasound and soon!

Keep us posted on how you are doing



HUgs,
Becca

 

[onetay]

I would say relief is most important so get help right away. Have you went to a specailist or has your gp even said anything about a specialist?If it is something to do with the lupus then the gp won't help you. It could be med related check the side effects with your scripts.
Let us know
onetay

 

[elainepink]

Hi Jo
I am sorry you are in pain - i am in the same situation with severe pain in my stomach for 3 years. Am on morphine when it gets very bad but like yourself have had all of the tests and all clear. There is something wrong - pain just doesnt happen but now my attitude when the tests come back clear is - well at least i dont have that.....
From my experience, i make lots of noise when the pain is very severe and get the meds i need. I have been to hospital in waterford and cork with the pain and still no answers which is frustrating. What i do is keep a diary - when the pain is bad, i write down what i have eaten, my time of the month etc and i have presented this to all of the doctors to try narrow it down.
It is very significant to note any common factors ie does the pain get worse after eating or before bowel movement. These are questions as you know are asked when you are in agony and often you just cannot think (well i cant anyway) but when you have the pain and if you need treatment, bring your diary - also record what you have been given and your reaction to it.
Big hugs
x e

 

[joirish]

:wavey:
Hi all,

Well was admitted to the Bons (private hospital here in Cork) on the 2nd of Oct. TG. Got a call on Sat am to say they had a bed for me, my reply to girl was I cant go to hospital have to take my nephew to Wheelchair Basketball in an hour (how mad is that)!! Anyway thought my GP was only writing to Consultant to get me seen at his rooms but Consultant had other ideas.

Anyway the results are as follows (after 3 Consultants saw me):
1- Inflam of the Ziffy Sternum and Inflam of 2 cartig on the last ribs
2- Non-Ulcer Dyspepsia (all the symptoms of an Ulcer but nothing there) that why i had they baffled re me telling them i was worse after eating.
3- Borderline High Blood Pressure (but i think that mostly due to the pain i have been in) getting that checked again in 3mths time.

Consultant said i just have to learn to live with Non-Ulcer Dyspepsia as stomach meds will help and pain killers but its just something that will flare from time to time. Going to Pain Management Clinic in the am for alternative treatment. Had Laser treatment for the Inflammation but main problem is still my stomach. The strong painkillers (DF 118's) are making me absent-minded (counted 300e as 200e yesterday)!!

So the moral of the story is even when the entire tests show up clear and you have pain there is something going on!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I just have to keep reminding myself that I know my body better then GP's/Consultant and they are suppose to be the EXPERTS..............................ya

Again A BIG THANK YOU :thanx: to all who responded to me it means a lot
Jo