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2 Posts
Hi, It all started last year with countless ulcers in my mouth and a crusty itchy rash over my face and ears. First of all they said it was roseasha but the creams they gave me just didnt work. By the time I got to see a dermatologist the ulcers had gone and I just had a bad rash. They have decided I have discoid lupus. Gave me creams and sent me on my way.
I am constantly tired but cant sleep, no I can go to sleep as soon as my head hits the pillow but I am up and down through the night and am up at 6 most mornings and give up.
I suffer from major bouts of depression which I am on high dosage for which just leaves me glazed for most of the day.
A couple of months ago I felt like my body had just given up, I found it hard to do anything, to walk upstairs I had to sleep for an hour to recover. I couldnt even peel an orange for my daughter.
The most frustrating thing was that inside I was me. I felt fine but it just wasnt happening.
I went to my gp who took the usual bloods and it showed some inflamation.
When I finally got in to see a rhumatoidologist I felt fine and they basically said it was nothing to do with Lupus I just had tense muscles.
I would just like to know if this kind of thing has happened to anyone else and how they dealt with it. I suppose I am scared as if it is Lupus connected what if it happens again? When will it happen again? I have 3 children to look after and I am geting little or no help from the people who are supposed to give me answers.
I would really appreciate it if someone would get back to me as I feel im in limbo. I would rather know either way than carry on like this.
I am constantly tired but cant sleep, no I can go to sleep as soon as my head hits the pillow but I am up and down through the night and am up at 6 most mornings and give up.
I suffer from major bouts of depression which I am on high dosage for which just leaves me glazed for most of the day.
A couple of months ago I felt like my body had just given up, I found it hard to do anything, to walk upstairs I had to sleep for an hour to recover. I couldnt even peel an orange for my daughter.
The most frustrating thing was that inside I was me. I felt fine but it just wasnt happening.
I went to my gp who took the usual bloods and it showed some inflamation.
When I finally got in to see a rhumatoidologist I felt fine and they basically said it was nothing to do with Lupus I just had tense muscles.
I would just like to know if this kind of thing has happened to anyone else and how they dealt with it. I suppose I am scared as if it is Lupus connected what if it happens again? When will it happen again? I have 3 children to look after and I am geting little or no help from the people who are supposed to give me answers.
I would really appreciate it if someone would get back to me as I feel im in limbo. I would rather know either way than carry on like this.