Hi all,
It's been ages since I visited the forums. I think it must have been just after I had a flare last August and its been quite a journey ever since.
I really need to just vent and get this stuff out. I'm so frightened at the moment!!
After I had my flare last August I ended up getting chest infection after chest infection. I was soooo sick
I also ended up getting with Costochondritis in the process. I was put on a round of Prednisone on 2 different occasions because of my chest infection and to top things off I found out just before Christmas I had something called Otosclerosis. Basically I'm going deaf
Just to remind people I've been giving a tentative diagnosis of MCTD.
During all of that illness. . .it was also confirmed that I'm in Premature Ovarian Failure at the age of 31. . .now I'm 32. . .yippee LOL - yeah right.
Plaquenil is still working pretty well for me but it doesn't make life perfect. My joints can only take so much which means I'm still not working a traditional job, and I can only walk so far till the sciatica in my back is killing me. That put such a strain on my families finances that we decided to move back to the USA.
I guess the stress of that sent my entire body into itchy madness LOL which still hasn't calmed down. The flight also seemed to make my feet/ankles and hands balloon with swelling
My mother thinks its Edema but I have no health insurance now that I'm back in the USA so its going to be a little while before I find a new doctor.
And if things were already bad enough. . .the skin on my knuckles is hardening - who knows what that is LOL
For the first time since my illness started getting disabling I'm scared. I'm scared that something might happen to me and I have a 9 year old daughter
My hormones from PCOS and POF are so out of whack that I'm overweight due to insulin resistance. I literally feel unhealthy, and its as if there's nothing I can do :worried:
I hope everyone will please send me some good vibes or prayers or whatever your thing happens to be!
Manda
It's been ages since I visited the forums. I think it must have been just after I had a flare last August and its been quite a journey ever since.
I really need to just vent and get this stuff out. I'm so frightened at the moment!!
After I had my flare last August I ended up getting chest infection after chest infection. I was soooo sick
Just to remind people I've been giving a tentative diagnosis of MCTD.
During all of that illness. . .it was also confirmed that I'm in Premature Ovarian Failure at the age of 31. . .now I'm 32. . .yippee LOL - yeah right.
Plaquenil is still working pretty well for me but it doesn't make life perfect. My joints can only take so much which means I'm still not working a traditional job, and I can only walk so far till the sciatica in my back is killing me. That put such a strain on my families finances that we decided to move back to the USA.
I guess the stress of that sent my entire body into itchy madness LOL which still hasn't calmed down. The flight also seemed to make my feet/ankles and hands balloon with swelling
And if things were already bad enough. . .the skin on my knuckles is hardening - who knows what that is LOL
For the first time since my illness started getting disabling I'm scared. I'm scared that something might happen to me and I have a 9 year old daughter
I hope everyone will please send me some good vibes or prayers or whatever your thing happens to be!
Manda