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Need to vent Flaring!!

927 views 13 replies 13 participants last post by  raggedyann1 
#1 ·
Hi all,

You would think after all these years I would recognize a flare when it occurs. You would also think that denial would be a thing of the past. Oh well I am a slow learner sometimes. :wink2: I have probably been flaring for almost a week. I was blaming things on anything else other than a flare.

I have done so well on the Enbrel, especially since everything settled out with my other meds last summer. I have far more good days than bad days. My concern about the flare is that it might mean that the Enbrel is no longer working. This concerns me on 2 fronts. One that I will have to try another medication. :worried: Secondly the financial side of things. I have extra help with my Enbrel copays, such that I don't have to pay a penny for it. I am on Medicare and will be in the donut hole by the end of this week. If I have to stop the Enbrel then it means a lot more cash out of my pocket before I hit the catastrophic level and prescription co-pays drop dramatically.

I realize I am way ahead of things in my thinking. I had a short flare in January and then came down with the flu a week later. Then I pushed myself on the quilt block swap. This 10 day run of Prednisone could very easily knock everything back down and I would continue on Enbrel.

I don't know why after all this time I think that things will stay on an even keel with the diseases. That has never been the way it has gone for me, especially not this 2nd round.

Thanks for "listening"

Karen
 
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Discussion starter · #14 ·
Thank you for your kind responses. Lily you know how it goes with the 2 of us. If I am flaring then you are too. We flare together even though we live on opposite ends of the world. :hehe:

I won't stop quilting, I am simply returning to my more gentle pace without deadlines. Even flaring doesn't stop me entirely, I still manage to get a little done most days. If all else fails I just touch some of my beautiful fabrics.

I am on day 2. 3 days of 40mg and then 7 days of 20mg. Energy levels high but I know it is the steroids, still hard not to go ahead and get stuff done. I might even hem a skirt tonight that I started on Tuesday. Very simple pattern.

marie2 I hope the prednisone knocks things down for you. It usually does for me, at some level or another.

Karen
 
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