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i know many people come here with questions about neonatal lupus. It is hard to find answers through the literature that is out there as it is all very redundant. I just wanted to let everyone know that I made a youtube video of my daughter's Battle with neonatal lupus and how it has effected her. On youtube if you search for neonatal lupus it comes right up. I am the only one, literally, in the world that has posted a video about neonatal lupus. Hope you all like it. Best wishes to everone.
 

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Wow thanks for that.
What a battle your girl has been through.

I am a neonatal nurse but have never seen a confirmed case of neonatal lupus.
It was suspected in my sister's little girl because of a peculiar vascular type rash present at birth. The rash gradually disappeared over a few weeks without treatment however.

Very best wishes to you and Presley
 

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What a beautiful, brave little girl you have there :)

Thank you for posting about her and sharing her journey with us and the world:)

Heres a direct link to the video

http://www.youtube.com/watch?v=5Ksr6h4NaJ0

Much love and strength to you and Presley
Joan:rose:
 

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My children both had awful problems with prematurity especially my Son. I had undiagnosed Lupus and the Paed. realised later that both children were typical neonatal lupus. I am so glad you made this Video!!!!!
x Lola
 

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what a delightful little girl, and utterly beautiful.

Your daughter is so lucky she has such a loving mum to help her through all this - what a journey for the whole family

raglet
give that baby a cuddle from me !
 
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