Neurological problems

Lily · Apr 28, 2004

I thought some of you with neurological presentations of Lupus might find this article informative.

It's fairly indepth but I found the info on MRI and EEG investigations and the diagnostic dilemna between MS and Lupus interesting. There are several here who are still in limbo with their neuro problems so I hope it helps.

http://www.emedicine.com/neuro/topic360.htm

love
Lily

Pandora · Apr 29, 2004

Good stuff

Thanks Lily!

here · Apr 29, 2004

Lilly,
That is a very informative article. Pretty technical. I wish I could give it to my doctor.
I don't understand even a 1/3 of it. That is why I would like him to translate thanks for thinking of us,

Jamie :shrug:

Anisah · Apr 29, 2004

Thanks Lily,

I went through years of the MS vs Lupus thing myself and in the end it's Lupus for me.

So far I have official dx's of encephalopathy, mononeuritis multiplex, cranial neuropathy, and vasculitis. I also have questionable dx's, i.e. depending on which Neuro you talk to

, of a small stroke and optic neuritis.

The neurological involvement in Lupus can be extensive.

Great article, thanks.

take care,
Anisah
:flowers:

Mullingar Girl · Apr 29, 2004

:wave: Thank you Lily.The doctor who recognised my symptoms all those years ago was spot on. He told me at the time that although a differential diagnosis was considered, the evidence with the bloods was conclusive.So, Lupus it was.I had a very close school friend who died with complications of M.S. at a very young age, so I condidered myself fortunate to have something else instead. My neurologist works hand in hand with my rheumatologist to keep me ticking over. I realise that not everyone is so lucky with their doctors, but I remind myself that it has taken many years to get to this stage.So, to those who dont have this back up, keep seaching and educate yourself and the public about your symptoms. Recently I wrote to my member of Parliament requesting more research in the U.K. and she passed it on to the health secretary.One small voice perhap.......but who knows. :nurse:
Kathleen.

Lily · Apr 29, 2004

The neurological involvement in Lupus can be extensive

So true!

I'm so glad I have a good team of docs now. The Neuro I got to after a dud neuro hasn't even blinked and eye about my wide and varying array of neuro problems. The first neuro wanted to rule out MS and anything after that was 'too complicated' and messy to deal with! She did not document half of what I told her or I presented with during that first consultation which led to an uneccessary delay in diagnosis for me. It's extensive and baffling to those Neuro's who are 'uninititated' as far as the complexity of Lupus goes.

So once again it pays to educate ourselves to make sure we are getting the care we deserve. If one neuro is baffled or seems unconcerned about 'unremarkable or unclear' diagnostic tests then please try and find one who will look at the big picture.

love
Lily

Jirel · Apr 29, 2004

Thanks, I copied over into a Word document so I can both have it to review and print it if I need to.

CaliGirl · Apr 30, 2004

:nurse: Great article...took me a while to translate it for myself, but worth the effort. Thanks for sharing. I just made a document and filed it. Brenda

Angie E · Apr 30, 2004

Very interesting Lily! Thanks!

Angie E

singa1 · Apr 30, 2004

Yeah some goood stuff allright I couldnt stop reading it. Thanks alot

Much Love,

Rachel

Vanilla65 · May 1, 2004

Thank you Lily for the information. I've printed it out to hopefully get one of the doctors I've been seeing the past month to help me get dx.

Anisah, I have had a stroke also. It happend after falling several different times and braking my left leg. Since then I have fallen more and almost broke my right leg. I notice I fall more when I get tired, stressed out, or both.

I am so glad to have found ya'll and this website. For years now I've been thinking I was going crazy (or was already crazy) with no one to understand. :wacko:

Cher1970 · May 1, 2004

thank you so much that was exactly what i was looking for

Caro · May 1, 2004

Excellent link, Lily.
I have pinned it so everyone will have a chance to read it.
The thread isn't locked, so replies are still possible.

susan01 · May 9, 2004

Thanks Lily. I'm half way done with it, am printing it, and will finish it while I take a bath! I love emedicine for info. It almost seems like every neurological symptom could be seen in either disorder. I found the brief discussion of MRI patterns interesting. Susan

SSlar99 · May 10, 2004

Thanks Lily

I just finished reading the article link. Very informative. I have saved it I plan on highlighting some focal points of the article and bring it to my new rhummy apointment.

Thanks a bunch!

Susan

Melody · May 24, 2004

Thanks Lily for the link. :flowers:

alobreto · May 26, 2004

Thank you for this link! I read the article from beginning to end and found it very informative.
alobreto :thumbs:

luppylu · Jun 2, 2004

:highfive: THANKS, LILY

This is much needed info.

Sheila

Angel F · Jun 9, 2004

Thanks, for the interest between MS/Lupus. My good friend has MS and had to go to Ireland to finally get a diagnoses and disability. I wonder if depression is another side effect of Lupus?? Do you Know? Thanks Angel F.

rhopeful32 · Jun 9, 2004

:highfive:

:flowers: :flowers:

" THANK YOU, LILY"

I HAVE BEEN LOOKING FOR INFORMATION ON THAT SUBJECT.

ONCE AGAIN "THANK YOU"

Neurological problems

Top Contributors this Month