Hi there,
I had my first Rheumatologist appt in Dec and she said that she thought I had either Lupus or SS. When my labs came back I was within range on all tests except my -ANCA was positive and my MPO was borderline at 21.
She had told me that regardless of the labs she was 100% sure I have an auto immune disorder. I have had fatigue, extreme hairloss, malar rash, petechaie, joint pain, dry mouth, eyes and skin, other rashes, etc.
Now, over the past couple years I have also had a few episodes of my leg or arm going numb and being tingly for a week at a time. Over the past two months (in addition to the numbness) I have now developed weakness in my left arm and hand. I can't grip things or open things with it. My legs have been giving out on me and I am falling all the time. I am dizzy and I forget things constantly. I can't think of words to use or I use the wrong words. I get confused about what I was doing. I will lose my balance and trip like I have been drinking. I have been getting headaches.
My Rheumy's office told me that she was on vacation and not to worry about these symptoms. So, I called my PCP and she had me come in right away. I had an MRI done because she thought I had Multiple Sclerosis, but it was normal. She is having me see a Neurologist on the 3rd for further evaluation. I guess she said that I could still have MS without visable lesions. I think it has to do with lupus or something like that because I am also starting to lose my hair again and that is how my flares start.
My question is do any of you have these types of symptoms as well? What happened with your doctor? Did you see an Neuro? I am nervous about having to have a spinal tap.
Also, what do they do to treat these symptoms?
Thank you all!
Andrea
I had my first Rheumatologist appt in Dec and she said that she thought I had either Lupus or SS. When my labs came back I was within range on all tests except my -ANCA was positive and my MPO was borderline at 21.
She had told me that regardless of the labs she was 100% sure I have an auto immune disorder. I have had fatigue, extreme hairloss, malar rash, petechaie, joint pain, dry mouth, eyes and skin, other rashes, etc.
Now, over the past couple years I have also had a few episodes of my leg or arm going numb and being tingly for a week at a time. Over the past two months (in addition to the numbness) I have now developed weakness in my left arm and hand. I can't grip things or open things with it. My legs have been giving out on me and I am falling all the time. I am dizzy and I forget things constantly. I can't think of words to use or I use the wrong words. I get confused about what I was doing. I will lose my balance and trip like I have been drinking. I have been getting headaches.
My Rheumy's office told me that she was on vacation and not to worry about these symptoms. So, I called my PCP and she had me come in right away. I had an MRI done because she thought I had Multiple Sclerosis, but it was normal. She is having me see a Neurologist on the 3rd for further evaluation. I guess she said that I could still have MS without visable lesions. I think it has to do with lupus or something like that because I am also starting to lose my hair again and that is how my flares start.
My question is do any of you have these types of symptoms as well? What happened with your doctor? Did you see an Neuro? I am nervous about having to have a spinal tap.
Also, what do they do to treat these symptoms?
Thank you all!
Andrea