Hi everyone, I haven't been on the forum for a while now, but could do with a bit of support.
I have now been diagnosed with Sjogren's syndrome as well as lupus.
I am back with my consultant and last time I was there they did the usual bloods and the results must have been passed on to my GP because about eight weeks after my visit to the rheumy my Dr phoned to say my iron levels were very low. He put me on iron and folic acid tablets which I tried to take, but they made me feel so sick. I went back and he then sent me away with a bottle of iron medicine, and to be honest it has just sat in the cupboard since.
I don't know whats wrong with me, its like I have lost the will to fight this disease at the moment.All I do every day is get up, get my two boys to school and then just lie on the couch slipping in and out of sleep all day and worrying about the thought of having to make their tea. When I have made their tea I just feel so relieved, and then I am back on the sofa.I have to walk to the shops sometimes, and when I get back I feel utterly exhausted and my heart is pounding.
Every time I have been to the clinic or to the GP's and had my urine checked there has been blood and protein in it, and every day I am in utter agony with bladder pains, its like having permanent cystitis which never goes away. Sometimes there are such large amounts of blood that it is visible.
I had a bladder and kidney scan and haven't had any news on the results, I am never sure who I am supposed to phone, the hospital that did it where my clinic is, or my GP
I just feel like I am sick of it all, and can't be bothered chasing results anymore. I know I should be going back to my Doctor because this iron thing has been going on since before Xmas and I have had no treatment (my own fault) I hate to think what my iron levels must be by now, but I just can't be bothered walking the half mile to the Doctors.
I am usually so active despite my illness, and people are amazed by how busy and positive I usually am.But right now I feel my fight has gone.Has anyone else felt like this?And how do you snap out of it? Any advice welcome!
I have now been diagnosed with Sjogren's syndrome as well as lupus.
I am back with my consultant and last time I was there they did the usual bloods and the results must have been passed on to my GP because about eight weeks after my visit to the rheumy my Dr phoned to say my iron levels were very low. He put me on iron and folic acid tablets which I tried to take, but they made me feel so sick. I went back and he then sent me away with a bottle of iron medicine, and to be honest it has just sat in the cupboard since.
I don't know whats wrong with me, its like I have lost the will to fight this disease at the moment.All I do every day is get up, get my two boys to school and then just lie on the couch slipping in and out of sleep all day and worrying about the thought of having to make their tea. When I have made their tea I just feel so relieved, and then I am back on the sofa.I have to walk to the shops sometimes, and when I get back I feel utterly exhausted and my heart is pounding.
Every time I have been to the clinic or to the GP's and had my urine checked there has been blood and protein in it, and every day I am in utter agony with bladder pains, its like having permanent cystitis which never goes away. Sometimes there are such large amounts of blood that it is visible.
I had a bladder and kidney scan and haven't had any news on the results, I am never sure who I am supposed to phone, the hospital that did it where my clinic is, or my GP
I just feel like I am sick of it all, and can't be bothered chasing results anymore. I know I should be going back to my Doctor because this iron thing has been going on since before Xmas and I have had no treatment (my own fault) I hate to think what my iron levels must be by now, but I just can't be bothered walking the half mile to the Doctors.
I am usually so active despite my illness, and people are amazed by how busy and positive I usually am.But right now I feel my fight has gone.Has anyone else felt like this?And how do you snap out of it? Any advice welcome!