[jenniferali]

I have NEVER joined a LUPUS site before. Myself, I have had this STUPID disease for over 22 years now. Im almost 38 now. I can take whatever this disease will give me.......EXCEPT the PAIN its horrible pain.Im just at my wits end.

 

[sweetladyjane]

I hear ya!

The pain in my hips is incredible, not to mention other parts of my body. Welcome to the site I am new here also. Vent away!!!

 

[Zoi]

Hello Jenniferali and a big :welcome: to the forum!

I'm sorry to hear you're in a lot of pain at the moment...

What meds are you on for your lupus? Are you on any meds for the pain you're experiencing? Are your doctors aware of your pain? Is it muscle/joint/nerve pain? There are treatments available for all sorts of pain lupus can cause, from plaquenil to immunossupressants to anticonvulsants to painkillers (depending on the type of pain and its cause), there are treatments out there Jenniferali... Do not despair.... :blush:

Hope you feel better soon... :grouphug2::hugbetter:

:flowery:

Zoi

 

[calico25275]

hello

Hello Jennifer,

I'm also need to the site, and hope you find it as useful as i have. I hope you are feel better soon.

 

[jenniferali]

Zoi

Im on alot of medications. plaquenil,imuran,seizure medications,Bipolar mania meds, pain meds.Much medications. I just cant seem to get back into remission again. I live in New York, seems like ever since I have been here my Lupus has gotten worse.

 

[Zoi]

Hey Jeniffer,

I'm sorry to hear about your lupus being so bad at the moment.... Are the seizure meds for seizures or for the pain? Is the pain joint pain, muscle pain or nerve pain? Has your doctor ever tested you for fibromyalgia? Fibromyalgia is a disorder that can cause severe widespread pain in the body with no "obvious" cause; it is diagnosed with a trigger point test your doctor can perform in his office and it can be treated with a variety of meds if that is what one has...

Have you told your docs how badly this pain is affecting you???

Hang in there Jennifer... Things will improve....!

Zoi

 

[Katharine]

Hi Jennifer and (((((((hugs)))))

I'm so sorry to hear that you are in so much pain. Constant pain like that wears you down terribly and makes everything else so much harder to deal with.

I'm afraid I don't really have much advice to give. By now you probably know more about the disease and the meds than I do. I was wondering though if you had ever been referred to a pain management clinic. Quite a few members here have found that to be very useful both from a medication point of view and in learning to deal with the pain differently.

again, lots of hugs :hug:
Katharine

 

[jenniferali]

Katherine

Yes,I go to pain management 1 time per month. I take 2 different kinds of pain medications. The pain DR.s want me off because its so strong that in time it wont help me because im so immune to very strong pain medicines. I feel stuck. I cant take tylenol because it has affected my liver.