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Discussion Starter · #1 ·
Hi I'm Trindy and think I'm very old to discover that I may have Lupus. I have numerous symptoms going back many years but always thought that Lupus only affected younger people. I'm 57 and not yet through menopause and never thought my diagnosis would be this. I have read today that menopause could be a cause which was new to me. Anyway I have a 7 week wait to see a specialist since they told that I am ANA positive and have some kidney damage. The worst thing is I feel so bad that I finding it hard to get up to go into work which is sad as I love my job. I was attracted to the sight because everyone seems so supportive and I could do with some of that right now because everyone keeps telling meI look so well now I have developed a rash - previously my face was pale.
 

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Hi there Trindy,:)

Welcome to the lupus site.

Unfortunately lupus doesn't discriminate on age or anything else for that matter.:eek:hno:

That lupus fatigued is one part of lupus that we all have to deal with.:( It is a fatigued that only people with lupus know what it is.

Oh and that statement "but you look so well." I think everyone of us has heard that several times. :grrr: If they could only see on the inside they would understand.

You have come to the right place for support and very caring members.

Take pictures of your rash so you can show your doctors and keep a list of symptoms.

Take care,
Lyn
 

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Hi Trindy

Welcome to the site - it's a life saver! There is so much to learn about lupus and its impact that can only be gained from those that have been through the various emotional stages themselves. Knowledge of the theory alone is not really enough.

You will find that it generally takes lupus sufferers many years, if not decades, to finally be diagnosed. (I was diagnosed at 53 having shown symptoms since I was 4 years old!) On the way they often get labelled first as hypochondriacs (if only in their own minds). This can take quite a toll on one's self confidence - so much so that diagnosis can be found to be something of a relief!

Fatigue is lupus and lupus is fatigue. The good news is that there are treatments that can help - although some can take some time to kick in. Hopefully, you may be able to continue work (at least part-time) in the future. Meanwhile - be kind to yourself - stress doesn't help with autoimmune diseases.

As regards your 7 week wait - perhaps you could get yourself on the waiting list for a cancellation.

Hope things improve.

Take care.

Merle
 

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:welcome: Trindy,

You are correct, the members of the forum are very supportive. They are friendly, caring and more than willing to lend a supportive ear when needed. Please feel free to post any questions you have, usually someone will be able to help. Don't forget to try our live chat. It is a great way to meet other members. You can ask questions in chat also. Don't be shy about coming in, we don't bite.

Take care,
Lazylegs
 

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Ditto what the others have said.

Welcome to the site.

I am sorry for what brings you here but happy you found this board.

It has been a life saver for me.

I wish you luck moving ahead and let us know how you get along.
 

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Hiya Trindy. Welcome, this is an invaluable site for knowledge, humour and kindness... I just wanted to add that often when we are 'flaring' people tend to say how well we look..:( I was told the other day I looked ill and pale.. but actually feel better than for ages....so you can't win!!!:)... it works often that we look opposite to how we feel, which is too much for most to comprehend, so natural to use our eyes to assess how people are... they can't understand it is not so in Lupus...:hehe: ah well, til the next time.
Claire XX
 

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Hi and welcome to the site. I have found it to be an invaluable place of support and info. As the others have said, lupus doesn't discriminate against ages!!

People always say to me how well I look when I have the malar rash!!! You do get used to it, although, some days are easier than others.

Look forward to seeing you in chat sometime!!

Take care

Deb
 

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Discussion Starter · #8 ·
Thank you

I am overwhelmed by evryone's support. Its so amazing that none of you have said "well it probably isn't lupus yo've been viewing too much on the net". Thank you for your understanding. Its good to know from people who've been there before me that what I am feeling isn't unusual.

I hope to come across you all again. I'm so greatful.

Trindy:)
 
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