[Lil Dee]

Hi guys/gals !
I'm sat at home, feeling very sorry for myself - for no good reason it seemed. Then I found this place I have spent a couple of hours trawling through the information here, and I feel a little better about what seems to be happening to me.

I wanted to say a huge THANK YOU to whoever is responsible for this site - it has helped me enormously in such a short time. I have read a little about Lupus a while ago, but didn't follow it up at the time. I've been feeling terrible all weekend, and have taken today off work, and started to search for information on my 'issues'.

I now have a list of things that I feel will help myself and my doctor clarify if it is indeed Lupus that I've been struggling with over the last few years - and all I want to do is cry :lol: How stupid is that !??

There are so many little stupid things that I have niggled me, and now I seem to have found out what they all mean.

My Raynauds problems have been one of the biggest pointers, but I now realise I have so many other 'symptoms' and hope that I can at last start to make sense of it all.

To all the others that have posted on here about your troubles and diagnosis efforts - I applaud you - you have given me the strength, and assured me that I am not alone in this anymore !! I'm off to the doctors tomorrow, and I hope that I will be able to come here with a more positive outlook after I have seen her.

THANK YOU everyone !!

 

[LolaLola]

Hello Lil Dee, I hope you feel a little better today. Constant pain is very wearing,it is no wonder you feel like crying. A big Welcome to you.
We have all been where you are now, and we all need each other,so keep coming here and enjoy the company.
x Lola

 

[Katharine]

Hello Lil Dee and welcome

It is truly a wonderful place here isn't it?

I am so glad that the site has already been helpful to you and I'm sure that it will continue to be as your journey progresses.

bye for now,
Katharine

 

[Joandublin]

Hi Dee and welcome

The very best of luck in your diagnostic journey and I hope that whatever is causing your symptoms can be uncovered as soon as possible. If you have read a lot of the posts already you will understand that for many it can be a long journey trying to uncover autoimmune problems (if thats whats wrong).

One tip - cultivate a good relationship with your doctor. Perhaps not mention the word Lupus to him at this stage - rather say that you suspect there may be something underlying or systemic that is connecting all your symptoms. Doctors dont often like the idea of patients self diagnosing and its best to get off on the right foot with these things!

Best of luck and do let us know how you are getting on

Take care
Joan:rose:

 

[lazylegs]

Hi Lil Dee,

Welcome! I am glad you decided to do some research and found us. The people here are very friendly and more than willing to give support. Feel free to post any questions you might have or visit the chat room for immediate feedback.

Take care,
Lazylegs

 

[Lil Dee]

Thank you all (again!!) for your welcomes

I'm feeling much more positive about things just now, having been to the doctors....although she was a locom, she listened to my story, and has sent off several test - including ANA and Anti-DNA. The results will be back in about a week, and we can take it from there.

Without this place, I wouldn't have known where to start - and would probably have spent another 12 months on the AD's (citalopram) chuggng along "coping" with life.

I'm not expecting miracles here, but I'm feeling far more positive about things, and I now understand that the depression could be a symptom, as oppose to the actual problem, which helps me stay more positive about how I've been feeling.

I think I may be around here for quite a while :wink2: LD