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Discussion Starter · #1 ·
I went to see a new gp today, I thought this was an actually doc appt, so list for meds ,dx and questionts I took with me
My fibro has been flaring and my anxitey and depression.
so I finally thougth wow know I will get good treatment

( my other gp died last april and my rhuemy will only treat lupus)

well what actualy happened ended up with me in tears and walking home i was so angry, not great walking home now I am in worse pain

I was actually interveiwed to see if I would fit into their heath heath office
1- they don't treat FM, it was claimed there is no treatment so why treat it
2- I have a complex case of dx, and they are not sure they can help me , it is a teaching centre and would not have the time to provide care with some many dx
3- they don't fill in disability papers
4-they would not fill my presciption that they did not dx
5- they will talk to the director of the centre and get back to me in a few days

I asked for pain management help. my rheumy doen'st provide that
I asked for treatment for my bipolar meds. they dont do that

I wanted to make so many comments. but at that point I just lost it and started crying.I have waited for this appt for three months. and was so looking forward to getting help with everything that the rheumy doesn't treat.

specially my walking and fibro pain which has been so bad lately.
they had me feeling back to 1989, when I was told that all these was in my head again.

I am just venting my friends. there is nothing I can do till I hear from them and then take it from there. why do we always have to fight to get proper treatment to get better,the stress of trying to prove you are sick is enough to make you sick
I am tired of being made to feel I am a complex case ,
when you have lupus and fm everything is wacky in the body,not our fault

I am tired of being made or allowing myself to feel that I am a fraud looking for treatment., it would be so nice to get rid of all of this and go back to work and never see another doctor again. but that is not in my cards right now. so why should I feel guilty I am sick and taking up doctors time to get treatment. should I just up and die because I am to complex for one doctor to care for. well news to them I am not going that route.I will find for treatment if it takes the next twenty years

long vent thanks for reading
 

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Good grief :mad:

I can understand why you're angry. I can't believe a lot of things there! I mean first off - why on earth can your rheumy not help with fibro? That totally escapes me!! Treating you means treating the whole not just that bits that suit - GRRRR!!!
Pain is also a very important part of your healing. OK the rheumy might not feel specialised enough for pain managment so why not refer you to a collegue who is???

I'm afraid I wouldn't wait for that call. I'd start trying to find another GP. It sounds like your treatment is long overdue and you have been being far too patient altogether.

I don't know the system over there but I can't believe that this is "normal" :mad: :mad:

Katharine
 

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Dear goats

How awful! This sounds like craziness on top of craziness. What is it, a bunion treatment centre ? Not to diminish the trouble of bunions but you know what I mean. Speaking relatively, you aren't all that "complicated". I know it's very hard to find doctors and change and no options in your health care system but this amounts to denying the most needy people any medical treatment and discontinuing existing treatment which is cruel and possibly medically dangerous

As for that rheumy, even in the UK, they recognise fibro these days ...

Sending you many strengthening hugs and good luck in finding better health care - "adequate" would be better than nothing. I don't know what sort of fuss you can make in the local media or anything, or with your elected representatives ?

Hugs
Clare
 

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This sounds like an extremely insulting experience. Please do not give up.
It sounds as if they are useless anyway.
x Lola
 

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Oh..Goats,

I feel so bad for you. I can't understand "why", it is so difficult to get good and prompt treatment, somtimes..:(

Hang in there hon, and I think trying a new dr. may just be the best route, If your tears wouldn't move them to help you...

I am very sorry, you went through this, and hope that you get a helpful and caring dr. very soon.

Love,
Sandy
 

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I would be getting a new doctor if I were in your shoes. That is down right appalling! It's so bad, it may be worth writing a letter of complaint to the head of the hospital/organization that doctor is affiliated with. The GP appt sounding like torture to have to endure, and the rheumy does not sound particularly helpful either not referring you to others for help with pain management in particular. And not treating fibro... that **should** be his or her job!

I hope you are able to quickly find another physician - & that you are able to get some kind of personal recommendation on who is good so you don't have to go see another lemon first.

(((hugs))) Take care...
 

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Goats,

Oh my, is all I could think as I read your post. :hug:
That is so appalling that they would treat you like that. When I get angry in a situation like you described I end up crying because I feel so hopeless at that point in time. I hope that you can find a new gp quickly. I have been surprised that your rheumy doesn't treat your Fibro or your pain. However it seems finding a new GP is the first priority and then after getting settled with him/her think about looking for a new rheumy.

Let us know how things go as you hunt for a new doctor.

Take care,
Karen
 

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Dear Goats

I have read and re-read your post so many times today that I've lost count. I still cant believe what I'm reading. I'm just so very angry on your behalf. This is an appalling way to be treated:mad: Its downright criminal :mad:

Is there some medical association that governs GP's where you live? If there is I would make contact with them and tell them exactly what you have told us. Failing that I would make contact with whatever public representative there is in your area. I know you must be exhausted with all of this but I'm glad to read that you are not going to go away quietly. If there is anything we can do here to stiffen your spine for the battle, just ask.

And for their information...there IS treatment for fibro. Specific treatment that has been FDA approved in June of last year - Lyrica. Here's the press release. So not only are they completely cold and callous - they are also incompetent and out of touch with current international treatments:mad:

http://www.fda.gov/bbs/topics/NEWS/2007/NEW01656.html

When you get a new and caring GP (and I know you will Carol:hugbetter:) slap the others with a copy of that press release :mad:

Oh and here's another link from FM-CFS Canada which says

Fibromyalgia is included in the World Health Organsation's International Classification of Diseases, in the Tenth Revision of the International Statistical Classification of Diseases and Related Health Problems (ICD-10) published by WHO in 1992 as follows:
M79 Other soft tissue disorders, not elsewhere classified
M79.0 Rheumatism, unspecified
Fibromyalgia
Fibrositis
http://fm-cfs.ca/Fibromyalgia_Treatment.html

From the same site above here is a pdf file which is A Clinical Case Definition and Guidelines for Medical Practitioners - An Overview of the Canadian Consensus Document. Particularly look at pages 12 onwards which outlines very comprehensively Treatment Guidelines for Medical Practitioners.

http://sacfs.asn.au/download/consensus_overview_fms.pdf

Slap them with this while you are at it.... :mad::mad:

In the meantime, we are all thinking of you and urging you to continue fighting for proper healthcare.

Much love
Joan:rose:
 

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Discussion Starter · #9 ·
Thank you all for your support, this is the best and only place to get it

Joan I have saved the sites. and will be using them
when I asked to be switched to lyrica from amytripline I was told it was sold at the health food store so check it out or go back to my rheumy

it is all so frusterating. I called the social worker today that had referred me. she told me that is was the worst story she ever heard and was going to deal with it. and it was the social worker at the medical center there that got me the appointment. as it is a teaching hospital and was sure it was the best place for me to get complete and up to date treatment

today I am in a better frame of mind and will deal with it all. as some of the older members here know I have been fighting this stuff for four years. I get one step forward and two back

but this site is the one place that has given me the strength and knowledge to keep going. and everyday I thank God I found it.

thank you all
 

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(((((((((((Carol))))))))))))))

Grrrrrrrr :mad: :mad: What an appalling way to treat a prospective patient :mad: Is there anything they do do there besides teaching (god help the students !) and research. If any centre should be well equipped to deal with complex cases then it should be a teaching hospital.

I am glad that your social worker is now aware of the situation and I hope she can rectify it. I'd still be making a song and dance about it though, unbelievable. If they won't treat what they haven't diagnosed then did they think to ask for your records - do you have them or can you get a hold of them? That might be helpful whichever direction you go from here seeing as your old GP passed away.

Sending hugs and strength Carol - Lupus Canada might like to hear how their patients are treated too - they seem like a fairly pro-active group - I wonder what they would think of this :mad:

love
Lily
 

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Dear Carol

I am so sorry you have had to deal with so much on top of already enough pain from this stupid disease.They are so wrong about the fibro and nothing to help you with it :mad: .i am just more and more appauled with the physcians anymore.I am so sorry and i sure hope you do find someone quickly to help you with the pain and stress.Please let us know how things are going for you.I pray and hope that you know we are here for you in whatever way we can help you(((hugs)))).

Tammy
 

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Hugs for you

Oh Carol,
I am so sorry for the way you have been treated. I pray they all are not that bad there and pray you can find a clinic/doc that can treat all of you. You are in my prayers. ((((((((((Carol))))))))))
Jules
 

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like me

Hi Carol
just wanted to say I'm sorry that you have come across doctors who are not caring. :eek: It is great that so many have posted such great affirmation for you.
It hurts so much :( when we come across healthcare professionals who don't seem to know their job, and don't know that they are supposed to be a caring profession, not just a business.

I had such a GP, and after a year have also moved on, and was cheered by my first appointment when the new GP said that the 3 doctors in the new (3months) practice take an interest in all patients. When she saw all my test results set out in books, as were the Xrays, US and scans, she asked could I email them to her, as patient information from previous practices is only a trite summary.
Their fridge magnet shows the email address plainly. I had to wait for 4 months to get into the practice, as we have a dire shortage of GPs. like you, some GPs have died, or others moved on. I kept ringing and eventually they took my address, and said they would look at practice numbers, and I rang start of January, and had an appointment 3 weeks ago.
I have scanned all my info, and emailing shortly.

Strangely the specialist I had to see 3000 km away last week, did not want that info, just scribbled away, as he flipped through the tests only. We /they are all different:worried: .
The reason I decided on the new GP was that the local paper 6 months ago showed this doctor as having the foresight to send patients by cheap plane flights the 3000km south, where also I'd been finding specialists. We have virtually no specialists in our city, not even visiting.
So we have to be alert to find the GPs and specialists that we need, so hope Carol that you will. Will keep you posted.:wink2:
 

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Carol,

I am glad that you are getting some help in dealing with this. How bad is the waiting time for a GP in your city? I am going to suggest that you don't stop the amitryptaline but ask for the Lyrica to add to your cocktail. I take both Nortryp and Gabapentin ( an older seizure med similar to Lyrica). The Gabapentin does most of the work but the Nortryp does help with some of my sleep issues.

Keep fighting you deserve better care!

Hugs,
Karen
 

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Discussion Starter · #15 ·
Thank you kindly for your replies,then give me the courage to keep on
my province actually has a shortage for gp. something like 50 thousand without.

but we have walk in clinics to take over the demand. but you see a different doctor each time. it is great for colds ,infection and so on
I am still waiting to hear from the other gp.I will let you know. thanks Karen about the information about the meds. I didnt realise you could take both.. I will update as things unfold. this week I was approved for a walker. so I will be able to get out of the apartment. which will be a great help

have a good weekend everyone
 
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