Hi Everyone,
I was dxd with SLE & Sjogrens at the end of FEB this year. But looking back, I've had it for years. Little did I know that my doc had tested me for it several years ago. All tests were negative then.
Being 48 - which by no means is old - I did think that the joint aches and muscle pains etc were just part of old age creeping up. And who goes to the doc for a dry mouth? Lost my voice, had a sinus op, speech therapy. We put things down to stress and old age when we just don't know. Fortunately my GP was astute enough to realise all these things were't the norm. After having the occasional bout of hives (thought it was an allergy to something I ate) sore legs and joints I eventually had a flare with a high temp and I could not move!! Not even my jaw. Thats when the tests revealed in Feb that I was now pos (SLE & Sjogrens).
Went without meds for a while but have now been put on Celebrex for the joint pains. Been on them for about 3 weeks now and boy do they make my gastro intestinal system function on the trot! I get quite nauseous with it. Anyone else have this? The rheumatologist I saw simply said to me "this is a very good drug and don't believe anything anyone else tells you about it". HUH? Whats he hiding from me? Anyway I'm going to finish the course like a good girl and see what happens when I stop!
Also been thinking of wearing boots to bed 'cos my feet get terrible cramps at night and my ankles need to be kept straight (I think) so as not to traumatise the poor ankles. Those first few steps in the morning are agony!
After all that, I really am quite a happy and fun loving person! (would you believe it). Nice to be able to have a good ol moan!
I was dxd with SLE & Sjogrens at the end of FEB this year. But looking back, I've had it for years. Little did I know that my doc had tested me for it several years ago. All tests were negative then.
Being 48 - which by no means is old - I did think that the joint aches and muscle pains etc were just part of old age creeping up. And who goes to the doc for a dry mouth? Lost my voice, had a sinus op, speech therapy. We put things down to stress and old age when we just don't know. Fortunately my GP was astute enough to realise all these things were't the norm. After having the occasional bout of hives (thought it was an allergy to something I ate) sore legs and joints I eventually had a flare with a high temp and I could not move!! Not even my jaw. Thats when the tests revealed in Feb that I was now pos (SLE & Sjogrens).
Went without meds for a while but have now been put on Celebrex for the joint pains. Been on them for about 3 weeks now and boy do they make my gastro intestinal system function on the trot! I get quite nauseous with it. Anyone else have this? The rheumatologist I saw simply said to me "this is a very good drug and don't believe anything anyone else tells you about it". HUH? Whats he hiding from me? Anyway I'm going to finish the course like a good girl and see what happens when I stop!
Also been thinking of wearing boots to bed 'cos my feet get terrible cramps at night and my ankles need to be kept straight (I think) so as not to traumatise the poor ankles. Those first few steps in the morning are agony!
After all that, I really am quite a happy and fun loving person! (would you believe it). Nice to be able to have a good ol moan!