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Discussion Starter · #1 ·
Hi, I'm going thru the process of trying to find out what's wrong with me and found this site, so here I am! HELLO! :)

I have so many symptoms I don't know where to begin, but the worst is overwhelming fatigue and pain pain pain! I don't have any rash on my face, so I'm thinking that maybe that could be the reason no one can diagnose me.. :sigh: I've had all sorts of blood tests, scans and x-rays, but all looks fine apparently, so that's ok (says the doc) except now I'm using a wheelchair coz I can't walk far any more... It's all very annoying as we moved from the UK to live in the most wonderful part of southern France and I can't enjoy it! :sad:

Anyway, it's nice to be able talk to like minded individuals who understand what I'm going though.

Best Wishes to all :)
 

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Administrator
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Welcome to the site French Maid.

You sound like me before I was diagnosed. Nothing jumped out to say what I had. All I can say is don't give up looking for what is wrong.

Are you being treated by a GP or a specialist? You mentioned scans, were they CT or MRI? Did they use contrast?

Feel free to ask any questions you have. We have all been where you are and would love to help if we can.

Take care,
Lazylegs
 

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Hello and welcome to the site :)

I'm sorry to hear that you have been going through so much and that you haven't been able to find out what's wrong.

I too was wondering which docs you had been to see. I don't know how things work in France but here in Belgium even the GP can send you off for any tests he sees fit but he most likely wouldn't have the experience necessary to ask for more specific blood tests etc. needed.

If the system is the same as here you are able to get an appointment to see a rheumatologist even without a referral. Again, depending on where you are, finding a rheumy who is experienced in auto-immune diseases might not be easy.

just some ideas, bye for now,

Katharine
 

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Discussion Starter · #4 ·
thank you for the nice welcome! I went to stay in hospital (Agen) to have several different kinds of scans and many many blood tests - errr - I can't really remember exactly which ones I had... all under the rheumatologist I was referred to by the local doc. The hospital was lovely - they even served delicious red wine with my meals, even though I was on painkillers! (vive la france :)) Anyway, all came back showing nothing, R.A. test negative, so I'm now being referred to another rheumatologist in Toulouse, where apparently the best consultants are (so I've heard).. Reading this site I don't think the blood tests were as thorough as maybe they should have been. The problem is that my doctor doesn't like his patients doing too much of their own research (I had the same problem with my GP in england until she discovered I was working as a BBC researcher and assistant producer!) No one can stop me trying to find out what's wrong with my body! :lol:

Right, I'm off to bed (again) - bye for now :bigsmile:
 

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The Other Illinois Tammy
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Hi and welcome to the site French Maid. I love your user name by the way. There are some other illnesses that come to mind with the fatigue and a lot of pain. That is not to say that you don't have lupus. It is often a process of alimination. They should be ruling out things as they go so that at the end you come to what it is like lupus.

I do hope that you get rest when you need it and that you have pain meds to help you through the day. If not you might want to ask for some as it does help a lot. I know that not even rest makes you feel less fatigued sometimes but at least the body has a chance to rest.
 

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Hi French Maid and welcome to the forum.

It is so hard to say what may be wrong with you. I am glad your treating with a Rheumatologist as that is moving in the right direction.

You know your body best. If you feel something is wrong then by all means do not give up until you get answers.

It took years for things to finally show up in my bloodwork and yet I was pretty sick long before any positive results appeared.

Keep us posted as you move along. For folks that have been dx with Lupus I always recommend they by The Lupus Book by Dr. Daniel Wallace. It is a must have written in laymans terms and may be able to provide you with better insight as to what your dealing with physically.

Take care of yourself and join us in the chat room sometime.:wink2::wink2::wink2:
 
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