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Discussion Starter · #1 ·
Hello Everyone,

I've just registered here so gradually having a look about and have found all the information really helpful so far so thank-you everyone.

Feeling quite scared and confused about what is in store for me health wise, I've very recently been diagnosed and I'm only just finding out how it might possibly affect me with the help of sites like these... its a massive amount to take in but i'm trying to stay positive...
 

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Discussion Starter · #6 ·
hello peeps :)

nice to meet you and thanks for your lovely messages, i'm so pleased i've found this site!

today i'm feeling much better after having a few 'dark' days, been trying to get my head round it all. i don't know how much this will affect me and as Lyn said we can't predict our future so as long as i do my best to take care of myself and be prepared, i will try to enjoy each day to the fullest while i still can.

i'm not on any meds yet and i'm not sure i need to be yet?... i have this week seen a homeopathic doctor who is hopeful she can get me better...

i haven't seen a rheumy either - my blood test for that came back fine and i haven't had any major complaints yet for pains, although this week i've had some stiffness, aches and heavyness under my arm/side of my ribs and it was a strain to even pick up my cup of tea! although today it is a little better. is that the kind of pain i should expect more of?... i also have pains, swelling and burning sensation in my leg but i think thats linked to my DVT.

i don't really know what kind of lupus i've got as my haematologist hasn't been overly informative so far - other than telling me i've got lupus which has shown up twice this year in my blood test - most of the information i've found out has been off the web! i'm going to see my GP this week and also try to see my haematologist again soon. however, i'm guessing its in my blood as i was told i had a blood disorder called lupus!

the reason they were doing tests on me in the first place is because last summer i had a blood clot in my leg (DVT) and it was somewhat of a mystery why it happened to me. a year down the line and a hundred or so tests later... here i am! it seems i am lucky perhaps that i haven't had to wait years and years for my diagnosis, although i'm starting to wonder if i have had this for years and years afterall!

alot of what i've read up makes MASSES of sense, many of the symptoms, other peoples stories etc etc. my health was always fantastic, apart from having mild glandular fever once as a teenager, up until about 4 years ago i rarely even caught colds, never been in hospital, never even broken anything! until i got glandular fever again four years ago but this time it was severe and my immune system crashed and i caught everything in town (well almost!) i spent a good six months completely wiped out and although i did return to work the same year and gradually built it up to full time, i've never felt fully recovered. i can probably count on both, possibly just one hand the number of days i've actually woken up full of energy... hmm, maybe i'm just getting old! I'm 29.

anyway, i don't want to this to turn into a rant or self pity so i'll stop here.

i am so pleased i've found this site though and its so good to know i'm not alone with what i'm going through. i have a fantastic family close to me who are very very supportive and i'm blessed to have them however its so great to find out what other sufferers are going through too, even though ideally, there wouldn't be any sufferers...

:)
 
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