[nauni49]

I keep getting these sores in my nose, have had them for years. Have fibromylagia and arthritus. It is getting increasingly hard to do things. But I am determined to keep on Keeping On!

I have looked on line many times for help and keep getting guided to the lupus sight but my doctor says I do not have lupus. What do I do and where do I go from here. I wish someone would help me get an answer. These sores are getting worse and are very painful. Thanks for your help!

 

[Salopsally]

Hi there,
Sorry your suffering. Lupus was never mentioned for me either for 12 years. I thought I had RA. Now Im diagnosed with Lupus and Fybromyalgia. I havnt suffered so much with the nose sores but mouth ulcers yes.

Just wondering if you have OA or RA?

Lots suffer from them here so Im sure they will be along soon to offer some help.

Glad your keeping positive.
Sal x

 

[cath]

Hi Nauni,

Welcome to the forum.

Which doctors have seen your nose sores? Has a rheumatologist or a dermatologist ever seen them? Have you ever has a swab taken from the sores to see if they are causes by a bacteria or virus?

On what grounds does your rheumatologist say you do not have lupus? Does he regularly check your bloods, urine and physical condition looking for it? Do you have any other symptoms which might fit in with a lupus diagnosis?

I can understand that having one symptom in common with SLE is worrying for you, but also if it really is just this one symptom that your rheumatologist is reluctant to diagnose lupus. Most people with lupus have a long list of symptoms, and most will have at least 4 of the ARC criteria (not that this is essential for diagnosis). Nose sores can also be caused by herpes simplex, or extremes in weather, and probably many other things too.

I would suggest that you read cautiosly about lupus and be informed about what symptoms are possible so that if you develop others you can report them. Also, your rheumatologist should be running the appropriate blood tests on you routinely (ideally every six months at least) so long as you contimue to have symptoms not explained by fibro or arthritis (is this osteo arthritis or RA?). That way, if you do go on to develop lupus it will be caught promptly.

X C X

 

[onetay]

Good advice about the swab and I would consider a specialist like a derm that is who found my lupus after 2 years of ruling everything under the sun out. God speed for your help. Have you tried a search from here for a site? Just a thought.