Hi I'm new here & not yet diagnosed not really sure where to start so I guess the beginning is best so I'll apologise in advance if this goes on.
I was diagnosed 10 years ago with Raynauds & rheumatiod arthritis, saw I rheumatologist who thought the rheumatiod arthritis was incorrect diagnosis which at the time made me feel like a hyprocondriac.
so whenever I was experiencing joint or muscle pain I tried to ignore it & didn't return to the doctors with any symptoms that presented over the years & kept things to myself, apart from servere chest pains which put me in hospital on several occasions & to get antibiotics (not penicillin as I'm allegergic) for recurring kidney infections
I had to change doctors with a house move who didn't know much about Raynauds but showed concerns about some blood tests that were taken but never shared the info??? Changed doctors about 2 years ago. I'm 32 now nearly 33. Although I'm happy with the doctors I have now you never seem to see the same doctors twice which means different doctors see different symptoms & nothing seems to get linked together.
that was until Nov 06 when a number of symptoms presented at the same time. I could barely even get out of bed & I felt like I'd got the flu. I was so tired, no energy but also the muscle & joint pain & swelling aswell as headches, blood disorder presenting itself visably by brusing on my arms & legs. my Raynaud attacks were now more frequent & more prolonged & I was also experiencing horrible facial blisters.
My doctor immediately diagnosed auto immune problem & sent me for blood tests & results have concerned the doctor. something is very high?? & she has referrred me to a rheumatologist but after my last experience I am very reluctant to go as these symptoms come & go & I haven't had them all at once again .
Knowing that it's an auto immune problem thats how I came across this site & Lupus seems to fit, so before going to the rheumatologist I revisted my doctor just to see what they thought but yet again saw a different doctor he said he could find no correlation between my syptoms & Lupus so I was wondering what you folks thought.
Oh & my face blisters in the sun so I never go out with out make up
I was diagnosed 10 years ago with Raynauds & rheumatiod arthritis, saw I rheumatologist who thought the rheumatiod arthritis was incorrect diagnosis which at the time made me feel like a hyprocondriac.
so whenever I was experiencing joint or muscle pain I tried to ignore it & didn't return to the doctors with any symptoms that presented over the years & kept things to myself, apart from servere chest pains which put me in hospital on several occasions & to get antibiotics (not penicillin as I'm allegergic) for recurring kidney infections
I had to change doctors with a house move who didn't know much about Raynauds but showed concerns about some blood tests that were taken but never shared the info??? Changed doctors about 2 years ago. I'm 32 now nearly 33. Although I'm happy with the doctors I have now you never seem to see the same doctors twice which means different doctors see different symptoms & nothing seems to get linked together.
that was until Nov 06 when a number of symptoms presented at the same time. I could barely even get out of bed & I felt like I'd got the flu. I was so tired, no energy but also the muscle & joint pain & swelling aswell as headches, blood disorder presenting itself visably by brusing on my arms & legs. my Raynaud attacks were now more frequent & more prolonged & I was also experiencing horrible facial blisters.
My doctor immediately diagnosed auto immune problem & sent me for blood tests & results have concerned the doctor. something is very high?? & she has referrred me to a rheumatologist but after my last experience I am very reluctant to go as these symptoms come & go & I haven't had them all at once again .
Knowing that it's an auto immune problem thats how I came across this site & Lupus seems to fit, so before going to the rheumatologist I revisted my doctor just to see what they thought but yet again saw a different doctor he said he could find no correlation between my syptoms & Lupus so I was wondering what you folks thought.
Oh & my face blisters in the sun so I never go out with out make up