Hi there,
Im quite new here and have posted a while back !
This is a very supportive caring place to come, it does give you comfort and hope also. To see we all have similar health problems, seems to me though (I sometimes feels its that sort of illness LUPUS, no one believes you, or family, work and friends dont take you very serious) sure some of you will back me up on that statement ? I do hope so.
Im at present in a mixed-up state. I live in UK, greater manchester.
Had bad horse accident over 21 years ago. (trying to cut the tale short) lol
years test etc etc. have definately got fibromyalgia. soldiered on now for 20 odd years, never out of pain, tired the WORKS, never took meds.
Horrid pain last april 08, sent to rheumy (NHS) locally. tests ON LOTS OF STUFF, bloodworks etc. I have Fms, reynauds, rheumatics "in there" and LUPUS. upsetting nightmare.
Work full-time, and quite perturbed ? Now on the sick, impossible at present to work. up to now having 3 weeks off on SSP.
I would love to know if anyone in UK or any country on here, IS IT TRUE TO SAY WITH WHAT IVE GOT IVE REASON NOT TO WORK AT SOME POINT ?
Does everyone work or what ? can they afford NOT TOO (this is the problem for me). Benefits ? - no idea where to start on THAT !!!
Im on Co-codamol 8/500 either 1 or 2 tabs 4 times a day (not exceed 8 in 24 hours), it taking THE EDGE of the pain, and im on PLAQUENIL. 200mg, one twice a day with food.
Im also very confused about, the rheumy said (he suspects I more than likely have lupus) now work are sending me TO WORK DOC ETC ETC, Ive nothing to hide either and back at hospital 14th May. Going tell rheumy need definate diagnosis. Docs surgery said plaquenil is for LUPUS.
Need someone on here to pacify me, my head is spinning with, WHAT IF THIS, WHAT IF THAT. Feel GUILTY off work even to be truthful, feel I should be IN WORK, but not well enough. Not a chance. What the **** did I ever do to derserve this pain and misery.
All answers replied to.
hugs and love Diane (Greater Manchester UK)
Im quite new here and have posted a while back !
This is a very supportive caring place to come, it does give you comfort and hope also. To see we all have similar health problems, seems to me though (I sometimes feels its that sort of illness LUPUS, no one believes you, or family, work and friends dont take you very serious) sure some of you will back me up on that statement ? I do hope so.
Im at present in a mixed-up state. I live in UK, greater manchester.
Had bad horse accident over 21 years ago. (trying to cut the tale short) lol
years test etc etc. have definately got fibromyalgia. soldiered on now for 20 odd years, never out of pain, tired the WORKS, never took meds.
Horrid pain last april 08, sent to rheumy (NHS) locally. tests ON LOTS OF STUFF, bloodworks etc. I have Fms, reynauds, rheumatics "in there" and LUPUS. upsetting nightmare.
Work full-time, and quite perturbed ? Now on the sick, impossible at present to work. up to now having 3 weeks off on SSP.
I would love to know if anyone in UK or any country on here, IS IT TRUE TO SAY WITH WHAT IVE GOT IVE REASON NOT TO WORK AT SOME POINT ?
Does everyone work or what ? can they afford NOT TOO (this is the problem for me). Benefits ? - no idea where to start on THAT !!!
Im on Co-codamol 8/500 either 1 or 2 tabs 4 times a day (not exceed 8 in 24 hours), it taking THE EDGE of the pain, and im on PLAQUENIL. 200mg, one twice a day with food.
Im also very confused about, the rheumy said (he suspects I more than likely have lupus) now work are sending me TO WORK DOC ETC ETC, Ive nothing to hide either and back at hospital 14th May. Going tell rheumy need definate diagnosis. Docs surgery said plaquenil is for LUPUS.
Need someone on here to pacify me, my head is spinning with, WHAT IF THIS, WHAT IF THAT. Feel GUILTY off work even to be truthful, feel I should be IN WORK, but not well enough. Not a chance. What the **** did I ever do to derserve this pain and misery.
All answers replied to.
hugs and love Diane (Greater Manchester UK)