[NettyKG]

I have SLE, MS and was diagnosed last week with bilateral retinal vasculitis. I have to see my consultant tomorrow re starting immunosuppresent treatment can anyone advise me on what to expect with this treatment

 

[LolaLola]

Dear Netty, Welcome here. Many of us are on Immunosuppressants. They can be a bit unpleasant at first but do work very well and mean that many people can either cut down on or totally avoid steroids.
x Lola

 

[NettyKG]

New Here

Dear LolaLola
I had a bad reaction to steroids the first time they gave them to me, they discovered that my system can't take anymore than 35mg per week otherwise I go completely off the rails, will this affect the type of immunosupprent they give, also do you have to be admitted to hospital for the initial dose of them?

 

[LolaLola]

Hello Netty, Some Immunosuppressants can be given by mouth once a week. This is how you would probably start. Some people need to self inject once a week and you would be taught to do this is necessary. Really it is only the more aggressive treatments that would be given in a hospital setting.
I hope this helps.
x Lola