Hi all
I was diagnosed with SLE Nov 2008, however my first spell in hospital was 2002 when I calapsed with Intercranial Hypertension. Presenting with temp lost of vision and disabling migraines, I endured 3 lumbure punctures and took lots of meds finally discharged march 2008.
Since 2002 I have visted my GP almost monthly with numerous complaints most of which have been diagonosed as a side affect of IIH - until June 2008when I had a very nasty rash that left me with no skin on sun exposed areas, eventually Oct I was diagnosed by a skin biopsy with SLE.
I am currently off sick from work and have been since Dec 2008, things got so bad that I was unable to do anything for myself and unable to look after my 2yr old as in constant pain that brought me to tears.
Eventually I saw a Rheumy and prescribe meds and things settled, but now the steriod dose has been lowered and the joint pain is returning.
Blood results: + ANA/+ DNA/+ ANTI-RO/ LOW COMPLEMENTS
Meds prescribed: Prednisolone 10mg/ Azathioprine 50mg/ Plaquenil 400mg/ Brufen Retard 2400mg/ Co-Codamol 2400mg
My Rheumy hasn't explained anything to me other than to confirm SLE diagnosis, tell me IIH was a Lupus flare, stay out of the sun and I am unable to considered having another child at this time?
Well thats most of my story, sorry to carry on, what does it all mean and has anyone else had similar experiences and what else should I ask the Rheumy?
I was diagnosed with SLE Nov 2008, however my first spell in hospital was 2002 when I calapsed with Intercranial Hypertension. Presenting with temp lost of vision and disabling migraines, I endured 3 lumbure punctures and took lots of meds finally discharged march 2008.
Since 2002 I have visted my GP almost monthly with numerous complaints most of which have been diagonosed as a side affect of IIH - until June 2008when I had a very nasty rash that left me with no skin on sun exposed areas, eventually Oct I was diagnosed by a skin biopsy with SLE.
I am currently off sick from work and have been since Dec 2008, things got so bad that I was unable to do anything for myself and unable to look after my 2yr old as in constant pain that brought me to tears.
Eventually I saw a Rheumy and prescribe meds and things settled, but now the steriod dose has been lowered and the joint pain is returning.
Blood results: + ANA/+ DNA/+ ANTI-RO/ LOW COMPLEMENTS
Meds prescribed: Prednisolone 10mg/ Azathioprine 50mg/ Plaquenil 400mg/ Brufen Retard 2400mg/ Co-Codamol 2400mg
My Rheumy hasn't explained anything to me other than to confirm SLE diagnosis, tell me IIH was a Lupus flare, stay out of the sun and I am unable to considered having another child at this time?
Well thats most of my story, sorry to carry on, what does it all mean and has anyone else had similar experiences and what else should I ask the Rheumy?