Hi i was told i have SLE march 08 having felt very ill with rash that started on my face in the nov 07 and joints seized up,anyway nobody knew why so battled on until jan 08 when i took myself off to hospital with clot on the lung only then i was sent an app to rhumatology where a great specialist told me i have lupus.
I have an underactive thyroid which was discovered during pregnancy 06 and take warfarin because i had a PE, i have just finished taking steroids that did nothing for me have a week ago started mycophenolate and take plaquanil.I wish it was something that would stop and go away but am learning that is not going to happen,right now im feel v tired all the time and my face is very sore with rash prob from uva but no joint pain for a change.
Anyway thats a bit about me any advice would be very grateful.
I have an underactive thyroid which was discovered during pregnancy 06 and take warfarin because i had a PE, i have just finished taking steroids that did nothing for me have a week ago started mycophenolate and take plaquanil.I wish it was something that would stop and go away but am learning that is not going to happen,right now im feel v tired all the time and my face is very sore with rash prob from uva but no joint pain for a change.
Anyway thats a bit about me any advice would be very grateful.