Hi, have just joined this site, although have logged on to this website many times before.
Have been suffering with SLE for 9 years since the birth of my daughter. I am 26 and having lupus has robbed me (and my daughter) of having a normal life. I have tried every single treatment..........from plaquenil to cytoxics .........the whole lot. I am now awaiting the new treatment due in the autumn. In the meantime I am admitted to hospital frequently with infections such as pneumonia etc and am completely disabled. Some days I do manage to get out of bed but have to pay for it with my joints seizing up and not been able to move. As well as the joints being affected so are my muscles, hair (I have lost most my hair), skin, lungs (pleurisy and pneumonia 4 times in past 2 yrs), heart (I suffer from pericarditis). I have also been diagonised with proctitis, fybermyalgia, cholecystitis, rheumotoid athritis, etc etc...all a consequence of having SLE. Has anyone else had lupus as severe and got better??
Have been suffering with SLE for 9 years since the birth of my daughter. I am 26 and having lupus has robbed me (and my daughter) of having a normal life. I have tried every single treatment..........from plaquenil to cytoxics .........the whole lot. I am now awaiting the new treatment due in the autumn. In the meantime I am admitted to hospital frequently with infections such as pneumonia etc and am completely disabled. Some days I do manage to get out of bed but have to pay for it with my joints seizing up and not been able to move. As well as the joints being affected so are my muscles, hair (I have lost most my hair), skin, lungs (pleurisy and pneumonia 4 times in past 2 yrs), heart (I suffer from pericarditis). I have also been diagonised with proctitis, fybermyalgia, cholecystitis, rheumotoid athritis, etc etc...all a consequence of having SLE. Has anyone else had lupus as severe and got better??