Hi - just joined and have taken comfort knowing I'm not alone. Becoming more convinced I have myositis - I can relate to the descriptions of symptoms. Started getting pain in upper arms last April which has been getting progressively worse and is now in both shoulders, my neck and down into my arms and hands. Have had various other symptoms over the 26 years since I was diagnosed but recently have become worse since I reduced the Plaquenil. Been told I have to come off it completely as I've been on it just over 20 years. Feel I have a long road ahead as it will take me about another year to come off it completely then I have to 'try' something else. Anyone else come off Plaquenil with similar problems?