Hello all,
I a male and I'm 29 and was diagnosed with Lupus about 1yr and 1/2 ago (27 at the time). I am on the "normal meds" Plaquenil, Naproxen, etc. I had had symptoms all thru high school and College, the week I got married (5 years ago, didn't think I was going to be able to attend! :lol:........ I was continually misdiagnosed (Rhumatoid arth., gout, MS, etc) until last year. I would have a crippling flare up about once or twice a year miss work, etc.
Anyhow, I'm glad to be diagnosed and actively fighting my disease. I am staying active, exercising and working out. I'm really surprised, but I actually feel better staying active. I still have the pain, but it seems more manageable. I know I have a long road ahead of me, but I believe 1/2 the battle is attitude, my Dr. agrees.
Just wanted to say that I'm glad to finally find a website that involves Men. At the current time the only other male that I know with Lupus is 35 and has give up on living. Well I have determined not to give up on life. I'm not saying that I won't ever get down and depressed with my sickness, but I had more of those issues while the Dr.'s were jerking me around like a lab rat. I got really low, when I was taking medicines that were making me sicker. Since my diagnosis, it is my mission to live everyday to its fullest, I have too much to live for and endure to let this illness get me down. Me and my wife are expecting our first baby next month and I have determined I'm going to still be around to play with his grandchildren!
Just a question, I know several lupus patients are on steroids can someone explain why their treatment is steroids? I know each and everyone conditions are different, but my Dr. hasn't mentioned steroids, except when I have a flare up and that is usually a shot in the hip. Anyhow, this is still a learning experience for all of us and I'm glad I joined the discussion.
Thanks for having me!
Daniel
I a male and I'm 29 and was diagnosed with Lupus about 1yr and 1/2 ago (27 at the time). I am on the "normal meds" Plaquenil, Naproxen, etc. I had had symptoms all thru high school and College, the week I got married (5 years ago, didn't think I was going to be able to attend! :lol:........ I was continually misdiagnosed (Rhumatoid arth., gout, MS, etc) until last year. I would have a crippling flare up about once or twice a year miss work, etc.
Anyhow, I'm glad to be diagnosed and actively fighting my disease. I am staying active, exercising and working out. I'm really surprised, but I actually feel better staying active. I still have the pain, but it seems more manageable. I know I have a long road ahead of me, but I believe 1/2 the battle is attitude, my Dr. agrees.
Just wanted to say that I'm glad to finally find a website that involves Men. At the current time the only other male that I know with Lupus is 35 and has give up on living. Well I have determined not to give up on life. I'm not saying that I won't ever get down and depressed with my sickness, but I had more of those issues while the Dr.'s were jerking me around like a lab rat. I got really low, when I was taking medicines that were making me sicker. Since my diagnosis, it is my mission to live everyday to its fullest, I have too much to live for and endure to let this illness get me down. Me and my wife are expecting our first baby next month and I have determined I'm going to still be around to play with his grandchildren!
Just a question, I know several lupus patients are on steroids can someone explain why their treatment is steroids? I know each and everyone conditions are different, but my Dr. hasn't mentioned steroids, except when I have a flare up and that is usually a shot in the hip. Anyhow, this is still a learning experience for all of us and I'm glad I joined the discussion.
Thanks for having me!
Daniel