Hey-
Diagnosed in July after 349 days of complete hell. Went through the whole "you're just stressed," "it's just a migraine," "you have cancer," "we don't know how to help you," shebang before I was finally diagnosed with lupus.
My main symptoms are a headache that never ever goes away, the inability to use my hands, and extreme fatigue. I have all the other symptoms, too- rashes, pain when breathing, swollen and painful joints, but they're much more mild.
I teach high school and am only 26. Right now I'm on 400mg of plaquenil and 20mg of prednisone daily. I was finally relatively symptom free from August to the middle of October. I got a bit overexcited and jumped right back in to my "old" life which is what I think has caused my current flare.
To be honest- I'm not doing well. In fact, I'm pretty angry-which manifests as tears (...joy...). I can't live my life the way I want to anymore. I can't workout the way I want to, I can't be the teacher I want to be, heck- I can't even be the person I want to be. Sometimes the only food I can eat are mashed potatoes, I can barely sleep through the night despite being exhausted...
I guess that's why I reached out into the interwebs and looked for a forum. I can't wait to peruse the topics and learn from all of your wisdom because I desperately need it.
I know I'm not the only one who feels this way and I know it'll get better... I'm just angry. And I don't feel well. And I miss my life.
Diagnosed in July after 349 days of complete hell. Went through the whole "you're just stressed," "it's just a migraine," "you have cancer," "we don't know how to help you," shebang before I was finally diagnosed with lupus.
My main symptoms are a headache that never ever goes away, the inability to use my hands, and extreme fatigue. I have all the other symptoms, too- rashes, pain when breathing, swollen and painful joints, but they're much more mild.
I teach high school and am only 26. Right now I'm on 400mg of plaquenil and 20mg of prednisone daily. I was finally relatively symptom free from August to the middle of October. I got a bit overexcited and jumped right back in to my "old" life which is what I think has caused my current flare.
To be honest- I'm not doing well. In fact, I'm pretty angry-which manifests as tears (...joy...). I can't live my life the way I want to anymore. I can't workout the way I want to, I can't be the teacher I want to be, heck- I can't even be the person I want to be. Sometimes the only food I can eat are mashed potatoes, I can barely sleep through the night despite being exhausted...
I guess that's why I reached out into the interwebs and looked for a forum. I can't wait to peruse the topics and learn from all of your wisdom because I desperately need it.
I know I'm not the only one who feels this way and I know it'll get better... I'm just angry. And I don't feel well. And I miss my life.